Wednesday, April 30, 2003
April, 2003
On Tuesday, April 28th Melissa called me at work at 6:15 in the morning crying in pain with her leg. I left work and came home to pick her up and take her to Dover Emergency room. They found a blood clot and decided it was okay to send her home. She was to follow-up with her Doctor and notify her ObGyn of the blood clot. Melissa had to follow-up with Dr. Trader on Wednesday and she was admitted to Newton Memorial Hospital. The blood clot turned out to be a deep vein thrombosis and could be dangerous if it moved. She was given Hepperin through IV which upset her terribly. It took 2 tries to get the line started but once done she was okay. She was also given Kumidin and told to rest. It has been 5 days and she is now starting to feel better and is allowed to walk the halls and sit up in a chair. The first several days were painful and she was given Percusset. This past week has been very stressful and Dad and I are dividing our time between the both of you. Needless to say I am exhausted but hanging on. Melissa stayed in the hospital until Monday and stayed home until the following Monday to recuperate. She did well on her first day back but had a set back on Tuesday. Her boss called me at 11:30 to come over and I found EMT’s and the health department standing around her. I called Dr. Trader and she told me to take her to Newton Hospital for a Doppler and blood work. Thank God everything is okay and the blood clot is gone and Melissa is feeling good.
April, 2003
Tomorrow is our big day with Liz and Gregg, I am so excited we are all going to be together but more importantly is where we are taking you. Today you will meet Roland who is a spiritual man who specializes in the mind and body connection. He spent one hour with you today and you were very responsive. He touched you and prayed for you and told you to fight hard and focus. You are already showing signs of improvement with the physical movement in your right arm. I believe you are more aware and will one day soon be with us. Roland told me that you see more than we think you do, I believe him and when we go to see the retna specialist on the 5th of May we will get some good news. Roland also said you are in no pain and that made me feel so much better. I am going to do whatever I can to get you there as often as possible. I believe he can help you Aaron.
You and Gregg had a great day together, after Roland’s we took you both for haircuts and then to Uncle Fred’s deli for lunch. PopPop and Grandma came to see you and you were so content and calm and smiled. They are great people and we are so blessed that our paths have crossed. I do believe you and Gregg will be good friends one day and will impact each other in a very positive way. I pray you will recover from this accident and you will have a quality of life you can be proud of and hopefully one day have a family of your own.
Today, I am making plans for a party for you at the center. One I believe will celebrate your life with all the people who truly care about you and at the same time we will have a salute to the class of 2003. I pray you will be awake to share in this special occasion and you will come to know how truly loved you are and how many friends have come to be with you. The center is doing the decorating and PopPop’s friend is playing music. Uncle Fred and Aun’t Nancy are going to cater it and we all know how great a cook they are.
Easter weekend is here and we are spending Saturday morning picking up the van and visiting with Grandma Jane. We arrived at the center about noon and Daddy followed and we got you home around 2. You were so good and friends came to visit. Andy D’Amico and Sarah Guenther and Debbie. Rob came with Jennine and you stayed up until late Saturday night. Barbara came and visited and the was great until we had to lift you out of the chair. Dad lost it and said we were never doing this again. But you know me Aaron, I take everything in stride and knew you were going to be okay. Worse came to worse we lifted you from the chair to the bed. One of the best things I could have done was to buy a Aero bed and replace the sofa bed mattress with that. It worked well and you slept like a rock. Barbara and Pat came over and they helped lift you in the chair and we went to Uncle Fred’s for Easter. There were about 30 people and we had a lot of fun. The weather was great and you sat on the deck for a while and enjoyed all your cousins and the rest of your family. One thing I forgot to mention was “Charlie” he was so cute when we got you home. He smelled you and ran to the couch, jumped up on the arm of the couch and cried because he could not reach you to give you a kiss. And of course Melissa especially enjoyed you being home because she got you all to herself.
I don’t know when we will get you home again Aaron but I will try my best, even for just a day. I noticed an improvement with you that warms my heart. I truly believe you are more alert and are more aware of your surroundings. You seem to understand more and even though you cannot speak I feel the connection. I can’t even imagine what it must be like for you to hear me and see me but not be able to talk to me. The center is concerned about your need to chomp down and naw at your hand. You are biting the inside of your mouth and causing it to bleed and get raw. Now I find out they are putting you on Valium. I must say all these drugs are making me nervous but they assure me that it is a very mild dose, just enough to take off the edge. I have to believe their right and it is the best thing for you. But make no mistake I will be watching closely to make sure it does not become excessive. If this is any indication that you are moving towards the next level than so be it, that to me is a good thing. I, more so than anyone do not want you to harm yourself and so if the valium will help you to not do that than so be it.
You and Gregg had a great day together, after Roland’s we took you both for haircuts and then to Uncle Fred’s deli for lunch. PopPop and Grandma came to see you and you were so content and calm and smiled. They are great people and we are so blessed that our paths have crossed. I do believe you and Gregg will be good friends one day and will impact each other in a very positive way. I pray you will recover from this accident and you will have a quality of life you can be proud of and hopefully one day have a family of your own.
Today, I am making plans for a party for you at the center. One I believe will celebrate your life with all the people who truly care about you and at the same time we will have a salute to the class of 2003. I pray you will be awake to share in this special occasion and you will come to know how truly loved you are and how many friends have come to be with you. The center is doing the decorating and PopPop’s friend is playing music. Uncle Fred and Aun’t Nancy are going to cater it and we all know how great a cook they are.
Easter weekend is here and we are spending Saturday morning picking up the van and visiting with Grandma Jane. We arrived at the center about noon and Daddy followed and we got you home around 2. You were so good and friends came to visit. Andy D’Amico and Sarah Guenther and Debbie. Rob came with Jennine and you stayed up until late Saturday night. Barbara came and visited and the was great until we had to lift you out of the chair. Dad lost it and said we were never doing this again. But you know me Aaron, I take everything in stride and knew you were going to be okay. Worse came to worse we lifted you from the chair to the bed. One of the best things I could have done was to buy a Aero bed and replace the sofa bed mattress with that. It worked well and you slept like a rock. Barbara and Pat came over and they helped lift you in the chair and we went to Uncle Fred’s for Easter. There were about 30 people and we had a lot of fun. The weather was great and you sat on the deck for a while and enjoyed all your cousins and the rest of your family. One thing I forgot to mention was “Charlie” he was so cute when we got you home. He smelled you and ran to the couch, jumped up on the arm of the couch and cried because he could not reach you to give you a kiss. And of course Melissa especially enjoyed you being home because she got you all to herself.
I don’t know when we will get you home again Aaron but I will try my best, even for just a day. I noticed an improvement with you that warms my heart. I truly believe you are more alert and are more aware of your surroundings. You seem to understand more and even though you cannot speak I feel the connection. I can’t even imagine what it must be like for you to hear me and see me but not be able to talk to me. The center is concerned about your need to chomp down and naw at your hand. You are biting the inside of your mouth and causing it to bleed and get raw. Now I find out they are putting you on Valium. I must say all these drugs are making me nervous but they assure me that it is a very mild dose, just enough to take off the edge. I have to believe their right and it is the best thing for you. But make no mistake I will be watching closely to make sure it does not become excessive. If this is any indication that you are moving towards the next level than so be it, that to me is a good thing. I, more so than anyone do not want you to harm yourself and so if the valium will help you to not do that than so be it.
April, 2003
I have been busy in your room at home cleaning and trying to organize everything. The iquana cage came out great and one of these days I will make your bed for the first time in 11 months.
Wednesday we are spending the day with Liz and Gregg. He is so excited to be hanging out with you and looks forward to seeing you soon. We may go to children’s specialized to see everyone and possibly get you a haircut. We are bringing you home for Easter overnight. I pray everything goes well and you will be able to connect with the home environment. Charlie will go crazy when he sees you but that may be what you need to help you through this.
I wish with all my heart that your best friend Brian will come soon. You need him and I believe he needs you as well. Your friends support you and love you very much. I am very impressed with the care they give to you and the comfort and support. They are sincere and very compassionate.
Wednesday we are spending the day with Liz and Gregg. He is so excited to be hanging out with you and looks forward to seeing you soon. We may go to children’s specialized to see everyone and possibly get you a haircut. We are bringing you home for Easter overnight. I pray everything goes well and you will be able to connect with the home environment. Charlie will go crazy when he sees you but that may be what you need to help you through this.
I wish with all my heart that your best friend Brian will come soon. You need him and I believe he needs you as well. Your friends support you and love you very much. I am very impressed with the care they give to you and the comfort and support. They are sincere and very compassionate.
April, 2003
Several weeks ago you had so many visitors. There were 19 people who came in one day. Mr. Nemeth, the soccer and basketball coach and his family. The DeRosa’s and family, your 2 great Aunt’s and cousins and Aunt’s and Uncle’s. You did so well and stayed awake the entire time. The two little girls sang Jesus loves you this I know, cause the Bible tells me so. Yes, Jesus loves me, yes Jesus loves me. They were so cute Aaron.
Your sister’s birthday is next month and I don’t know what to do for her. She is going to be 24. Beth is taking her to Atlantic City where she is staying at the Taj Mahal and going to see Sheryl Crow. She is so lucky to have such a good friend and I pray their friendship lasts forever.
Wednesday is going to be a very important day for me. I am taking your cat scan to Children’s Specialized in Mountainside so Dr. Yalamanchi can compare the new one to the one taken in October. I hope to see Sally, Lauren and Stephanie while I am there. Lauren emailed me not too long ago to ask how you were doing. You were very special to all of them and they had hoped with all their hearts they could have done more.
Well, Wednesday is here and I will be meeting with Dr. Y. It was as I had expected and that is a wait and see. He said you may never be able care for yourself or walk or talk, but I don’t believe that. In my heart I truly believe you are giving yourself the time you need to heal. I pray for that day so much. I know you will never be the same but I think you can find your way back to us and some function of life. I saw Sally and Lauren and they were asking about you, I bought pictures with me and they took some for their wall.
Your new wheelchair has arrived and I must say you are so much more comfortable and relax much more than before. It is fire engine red and has a head strap to help keep your head up. Sometimes you are fine without it and others, especially when you are tired you fall forward.
I am noticing you are more alert and seem to be understanding more. You smile all the time and are eating very well for me. Your friends are coming more and they have enjoyed their visits with you so much. Some have heard you make sounds and squeeze their hands and look at them when they talk to you. More and more are coming to see you and they come back more often. They want you to do the walk for graduation but I don’t think that is possible. The only way I can do that is if you tell me you want to. If you can do that I will have you there in a heartbeat.
Your sister’s birthday is next month and I don’t know what to do for her. She is going to be 24. Beth is taking her to Atlantic City where she is staying at the Taj Mahal and going to see Sheryl Crow. She is so lucky to have such a good friend and I pray their friendship lasts forever.
Wednesday is going to be a very important day for me. I am taking your cat scan to Children’s Specialized in Mountainside so Dr. Yalamanchi can compare the new one to the one taken in October. I hope to see Sally, Lauren and Stephanie while I am there. Lauren emailed me not too long ago to ask how you were doing. You were very special to all of them and they had hoped with all their hearts they could have done more.
Well, Wednesday is here and I will be meeting with Dr. Y. It was as I had expected and that is a wait and see. He said you may never be able care for yourself or walk or talk, but I don’t believe that. In my heart I truly believe you are giving yourself the time you need to heal. I pray for that day so much. I know you will never be the same but I think you can find your way back to us and some function of life. I saw Sally and Lauren and they were asking about you, I bought pictures with me and they took some for their wall.
Your new wheelchair has arrived and I must say you are so much more comfortable and relax much more than before. It is fire engine red and has a head strap to help keep your head up. Sometimes you are fine without it and others, especially when you are tired you fall forward.
I am noticing you are more alert and seem to be understanding more. You smile all the time and are eating very well for me. Your friends are coming more and they have enjoyed their visits with you so much. Some have heard you make sounds and squeeze their hands and look at them when they talk to you. More and more are coming to see you and they come back more often. They want you to do the walk for graduation but I don’t think that is possible. The only way I can do that is if you tell me you want to. If you can do that I will have you there in a heartbeat.
Saturday, April 12, 2003
April 12, 2003
Today is Saturday, April 12, 2003 and it turned out to be a beautiful day. We had you outside for 2 hours and you were so relaxed and content. You wore the sharp outfit from Katie Howell, I must say she has great taste. She bought you Tommy Hilfiger pants, shirt and socks and boxers. Needless to say they were all red.
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