March, 2005

March 2005, you are running low grade temps and are more congested. They have done blood work and chest x-rays and are watching you very carefully. Unfortunately, you are not getting better and continue to get more congested. They have decided to put a pictline in so they could give you IV fluids and antibiotics.

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March 20, 2005 you are admitted to the hospital with pneumonia and a very serious sinus infection. The first several days were very scary and they continually suctioned you and were very concerned about your lungs. The specialist wanted to re-traech you and put the tube in your throat but I felt you needed a little more time. Well, I was right and you fought very hard and came through just fine. I was still very worried because you were very weak and sluggish all the time. Even though the pneumonia and sinus infection cleared up you were not yourself.

We went back to the center after 2 weeks in the hospital and you were very weak. You started to vomit and continued every day for the next 10 days or so. They continued you on IV fluid and antibiotic but you continued to get sick. You were having difficulty with your pictlines and we had to replace them several times. Your veins were very small and it was most difficult keeping in a IV.