Today is December 28, 2007 and I would like to reflect on this past holiday. For the most part, the holidays are very difficult because of the void I feel since Aaron’s accident. I try to make the most of it and always include Aaron in our plans. It is very important to me that he be with us to celebrate the occasion and not spend it in rehab.
About a week before Christmas I came home to a package addressed to Aaron. It was from Santa in Nomb Alaska. When I opened it there was a wrapped present and a letter inside. The letter touched my heart and I knew it was from someone who knows Aaron well. I took the letter and gift to the center so I could read the letter to him and let him open the gift as much as he could.
The letter was anonymous, signed from Santa. It was a beautiful letter that spoke about Aaron’s fight to get better and how he is admired by many.
We opened the gift together and inside was a red digital camera, obviously someone knew his likeness for the color red. The camera was a wonderful gift for Aaron and one that will be put to good use.
Thank you whoever you are for your thoughtfulness and kindness. Most especially for remembering after 5 years.
Aaron is truly blessed!
Christmas day was a wonderful day, Aaron was with us at my sister’s house and he was able to see his Aunt’s and Uncle’s, cousins and Grandfather.
It is the quality of time one shares with family and friends that make it so special.
Friday, December 28, 2007
Wednesday, December 26, 2007
Thanksgiving - Christmas Holidays
Today is November 27, 2007 and it has been so long since I wrote in your journal. You have been doing very well, alert and focused, you have been eating well and very calm.
Andrea comes on Monday and Tuesday for approximately 6 hours and works you very hard. You respond so well to her and follow her directions. It may take a session for you to do one task but you do it and do it well. You are always very proud of yourself and smile all the time.
I have some concerns about your weight because you lost 6 lbs. in a month. You are on a continuous feed and when I come in the afternoon I will disconnect you and feed you yogurt and fruit. Now they are watching you closely and monitoring your weight.
The nature path walkway is completed and we go for walks when the weather cooperates. We will sit under the pergola and read often times where it is so peaceful and quiet.
Mom has been struggling with so many things Aaron, I am trying to stay strong for you but sometimes it is very hard. I long for you to be home with us but it would be very difficult to care for you. My saving grace is work which allows me the freedom to let it go for a little while.
There has been so much talk on the news about new research for brain injury patients and I pray that one day you will be able to be part of the studies. However there is so much controversy with regard to the plates in your face. So much depends on getting clear pictures with an MRI and the plates may distort the pictures. I continue to pray for you and that one day you will be able to have some quality of life. For now I will come daily and be sure you have everything you need.
For the past several weeks you have been very congested and I was concerned it would go into your lungs. They had to keep deep suctioning you in order to get it out. It made it difficult for you to breathe easy but you did not have a fever and was in good spirits.
Dad went on his annual golf trip to Tampa. He turned 60 on the day he left so we did not get to celebrate.
Thanksgiving we went to Aun’t Trudy’s for dinner, it will be the last one because Laura wants to start having it at her house. She won’t be able to accommodate all of us so things will be different for us.
Today is December 1st, 2007 and Mom is having a surprise party for Dad. He does not suspect a thing and his friends from work and golf friends will be there. I am looking forward to it, there will be a DJ and approximately 50 people. The only thing that saddens me is not having you a part of it. The party is at night and you have been congested and Mom does not want to take any chances.
Andrea continues to come on Monday and Tuesday, you have been alert and focused and doing well for her. She is very proud of you and tells me how hard you are working. She started a bible study at the center on Tuesday’s and it has been very successful. It is people coming together sharing God’s words, reading special psalms and listening to beautiful music. We begin and end with prayer.
On December 14th Mom will be going to Andrea’s for the weekend. She wants me to see Bethlehem at her church which is on Saturday and Sunday. I am looking forward to time away, it is always so relaxing for Mom and it gives me time to separate myself from the stress and worries that I feel everyday. You will be well taken care of and will have people coming to visit. Mom will call everyday and talk to you on the phone.
Well, the 14th is here and I am coming to the center to see you first and then onto Andrea’s. I left about 2:15 and arrived at her house around 3:30. We had to be at church by 5 so it was a little hectic but oh so beautiful. We stayed up until 3 talking, laughing and sipping wine.
We relaxed and hung out on Saturday, Mom cleaned Andrea’s new refrigerator and had some down time after Andrea left for Church. I decided to stay behind and do some work and went to Bethlehem later.
I met with Pastor Mike of the 5 Church, he runs the youth church in Forked River. He asked if I would come to his service in March and tell our story He feels it will help other people. Mom is a little nervous but I truly believe it is important for other people to know. I have to write down my thoughts and send them to Pastor Mike to read.
On Sunday we went to a Christmas show in Burlington NJ it was beautiful. You felt like you were in Radio City Music Hall. I left to come home on Monday morning, it was a very special weekend for Mom to be able to share it with Andrea. She gave Mom an opportunity to let it all go even for just a little while.
The holidays are approaching and hopefully you will stay healthy and come to Aun’t Ginny’s for the day on Christmas. I am especially glad for PopPop to be able to spend time with you. I pray Melissa will come so she can be with you as well. NJ transit is picking us up a 1 pm and bringing us back at 7.
Andrea is in Florida with her Dad and will not be back until the 1st of January. We won’t see her for several weeks but she is need of much rest with her busy schedule. She will be playing golf and relaxing in the sun. It does not get any better than that.
Mom has been working a lot of overtime because of the new system at work. I will be working during Christmas break but looking forward to not having to get up to an alarm clock going off.
Melissa will be home for the holiday but leaving for Atlanta, Ga on the 27th. She will be back after New Year.
Dad will be off from work this week as well, we hope to take apart the attic a little at a time. There is so much stuff up there and half of it I don’t even remember.
For anyone who may be reading this journal, Aaron and his family would like to wish all of you a very Merry Christmas and a Happy New Year!
Andrea comes on Monday and Tuesday for approximately 6 hours and works you very hard. You respond so well to her and follow her directions. It may take a session for you to do one task but you do it and do it well. You are always very proud of yourself and smile all the time.
I have some concerns about your weight because you lost 6 lbs. in a month. You are on a continuous feed and when I come in the afternoon I will disconnect you and feed you yogurt and fruit. Now they are watching you closely and monitoring your weight.
The nature path walkway is completed and we go for walks when the weather cooperates. We will sit under the pergola and read often times where it is so peaceful and quiet.
Mom has been struggling with so many things Aaron, I am trying to stay strong for you but sometimes it is very hard. I long for you to be home with us but it would be very difficult to care for you. My saving grace is work which allows me the freedom to let it go for a little while.
There has been so much talk on the news about new research for brain injury patients and I pray that one day you will be able to be part of the studies. However there is so much controversy with regard to the plates in your face. So much depends on getting clear pictures with an MRI and the plates may distort the pictures. I continue to pray for you and that one day you will be able to have some quality of life. For now I will come daily and be sure you have everything you need.
For the past several weeks you have been very congested and I was concerned it would go into your lungs. They had to keep deep suctioning you in order to get it out. It made it difficult for you to breathe easy but you did not have a fever and was in good spirits.
Dad went on his annual golf trip to Tampa. He turned 60 on the day he left so we did not get to celebrate.
Thanksgiving we went to Aun’t Trudy’s for dinner, it will be the last one because Laura wants to start having it at her house. She won’t be able to accommodate all of us so things will be different for us.
Today is December 1st, 2007 and Mom is having a surprise party for Dad. He does not suspect a thing and his friends from work and golf friends will be there. I am looking forward to it, there will be a DJ and approximately 50 people. The only thing that saddens me is not having you a part of it. The party is at night and you have been congested and Mom does not want to take any chances.
Andrea continues to come on Monday and Tuesday, you have been alert and focused and doing well for her. She is very proud of you and tells me how hard you are working. She started a bible study at the center on Tuesday’s and it has been very successful. It is people coming together sharing God’s words, reading special psalms and listening to beautiful music. We begin and end with prayer.
On December 14th Mom will be going to Andrea’s for the weekend. She wants me to see Bethlehem at her church which is on Saturday and Sunday. I am looking forward to time away, it is always so relaxing for Mom and it gives me time to separate myself from the stress and worries that I feel everyday. You will be well taken care of and will have people coming to visit. Mom will call everyday and talk to you on the phone.
Well, the 14th is here and I am coming to the center to see you first and then onto Andrea’s. I left about 2:15 and arrived at her house around 3:30. We had to be at church by 5 so it was a little hectic but oh so beautiful. We stayed up until 3 talking, laughing and sipping wine.
We relaxed and hung out on Saturday, Mom cleaned Andrea’s new refrigerator and had some down time after Andrea left for Church. I decided to stay behind and do some work and went to Bethlehem later.
I met with Pastor Mike of the 5 Church, he runs the youth church in Forked River. He asked if I would come to his service in March and tell our story He feels it will help other people. Mom is a little nervous but I truly believe it is important for other people to know. I have to write down my thoughts and send them to Pastor Mike to read.
On Sunday we went to a Christmas show in Burlington NJ it was beautiful. You felt like you were in Radio City Music Hall. I left to come home on Monday morning, it was a very special weekend for Mom to be able to share it with Andrea. She gave Mom an opportunity to let it all go even for just a little while.
The holidays are approaching and hopefully you will stay healthy and come to Aun’t Ginny’s for the day on Christmas. I am especially glad for PopPop to be able to spend time with you. I pray Melissa will come so she can be with you as well. NJ transit is picking us up a 1 pm and bringing us back at 7.
Andrea is in Florida with her Dad and will not be back until the 1st of January. We won’t see her for several weeks but she is need of much rest with her busy schedule. She will be playing golf and relaxing in the sun. It does not get any better than that.
Mom has been working a lot of overtime because of the new system at work. I will be working during Christmas break but looking forward to not having to get up to an alarm clock going off.
Melissa will be home for the holiday but leaving for Atlanta, Ga on the 27th. She will be back after New Year.
Dad will be off from work this week as well, we hope to take apart the attic a little at a time. There is so much stuff up there and half of it I don’t even remember.
For anyone who may be reading this journal, Aaron and his family would like to wish all of you a very Merry Christmas and a Happy New Year!
Friday, October 12, 2007
October 12, 2007
Today is Andrea’s birthday and you are supposed to go to the High School for the Drivers Ed classes to tell your story. I wrote it and Matt will read it and share your photo album for all to see.
Saturday, September 22, 2007
September 19-22, 2007
You have been very quiet your body temperature is still running low. They keep warming you up and give you hot tea thru the G tube. Hopefully you will start to feel better soon and be back to your old self.
I have been putting in long hours with work due to a back log of work. I missed seeing you 3 nights this past week. Even though there was someone with you it was not the same for me.
You seem more alert and your body temp. is back to normal. You lost 3 lbs. this month, which may not seem like a lot but with everything else that has been going on I worry.
Dr. Meir came by to see you and he put you on a antibiotic for your ears.
Saturday, September 22nd...You were sound asleep in the dayroom when I arrived. When you woke up you were smiling and very content. We went downstairs and I gave you fruit and yogurt and we spent the rest of the afternoon together.
Dad didn’t come, he was not feeling well and decided to go home after Bernardsville.
Uncle Jamie and Julianna came down to visit and they got to hear you vocalize while you were on the phone with Dad. It was great!
Next Sunday we are having a party for you in the dayroom for your 23rd birthday. The family, friends and families at the center will be coming down to join us. Uncle Fred is doing all the food and I am going to get an ice cream cake from Baskin Robbins. Hopefully, the Caruso’s and Aun’t Dara and Uncle Jack will be able to come. I also asked Liz and Pete to join us. I don’t know if any of your friends will make it but I asked Melissa and Amy to come.
God willing you will be healthy and in great spirits.
I have been putting in long hours with work due to a back log of work. I missed seeing you 3 nights this past week. Even though there was someone with you it was not the same for me.
You seem more alert and your body temp. is back to normal. You lost 3 lbs. this month, which may not seem like a lot but with everything else that has been going on I worry.
Dr. Meir came by to see you and he put you on a antibiotic for your ears.
Saturday, September 22nd...You were sound asleep in the dayroom when I arrived. When you woke up you were smiling and very content. We went downstairs and I gave you fruit and yogurt and we spent the rest of the afternoon together.
Dad didn’t come, he was not feeling well and decided to go home after Bernardsville.
Uncle Jamie and Julianna came down to visit and they got to hear you vocalize while you were on the phone with Dad. It was great!
Next Sunday we are having a party for you in the dayroom for your 23rd birthday. The family, friends and families at the center will be coming down to join us. Uncle Fred is doing all the food and I am going to get an ice cream cake from Baskin Robbins. Hopefully, the Caruso’s and Aun’t Dara and Uncle Jack will be able to come. I also asked Liz and Pete to join us. I don’t know if any of your friends will make it but I asked Melissa and Amy to come.
God willing you will be healthy and in great spirits.
Tuesday, September 18, 2007
Labory Day - September 18, 2007
It is now Labor Day and the end of summer. School will be going back in and you have been doing well. Your friend Melissa has been in touch and she is organizing a time when she can bring her friends to meet you and Sean. I am so excited that you will have someone to work with you and help you with communication skills. I t is nice for me as well because I can take some time for myself and know you are in good hands.
Andrea has started back to Carteret High School and Seton Hall. She is overwhelmed with her studies and teaching and I know we will not be seeing her for a while. She keeps in touch and asks about you all the time. We will miss her but I know if we ever needed her for any reason she would be there. We wish her well!
Melissa is very busy with work and school as well. S he works at home every night and she is just getting over being sick.
Tuesday, September 11th was not a good day for you. Unfortunately, you became ill and started with the high temps, agitation and sweating. They had to put you on a cooling blanket and give you morphine and adavan. i had not seen you like that in months and it was devastating. I was so scared. Veronica hooked up an IV and sat by your bedside until you calmed down. The next several days you were still not yourself, you were pale and tired. Your body temperature was between 95 and 97. Melissa, the OT, came and spent time with you so you were not alone. I have been glad to have her, especially since she has been working overtime.
The remainder of the week you were restless and very uncomfortable. On Friday I noticed drainage from your ear and told the nurse. S he was going to contact Dr. McCagg and see what she wanted them to do. With the weekend coming they decided to put you on antibiotic drops and on Monday they were calling Dr. Meir for a consult.
Friday, Sept. 15th...You were very agitated and I believe you were having pain. Saturday and Sunday you were very quiet and your body temperature was running cold. The nurse warmed you up with blankets and warm tea.
Monday, Sept. 18th...You were quiet and very sleepy. They put you in bed at 4:30 and you went into a very deep sleep. You were cold and they once again warmed you up with blankets. I am not sure what is going on but the Dr. said she believes you have an infection. Now they just have to find it.
Andrea has started back to Carteret High School and Seton Hall. She is overwhelmed with her studies and teaching and I know we will not be seeing her for a while. She keeps in touch and asks about you all the time. We will miss her but I know if we ever needed her for any reason she would be there. We wish her well!
Melissa is very busy with work and school as well. S he works at home every night and she is just getting over being sick.
Tuesday, September 11th was not a good day for you. Unfortunately, you became ill and started with the high temps, agitation and sweating. They had to put you on a cooling blanket and give you morphine and adavan. i had not seen you like that in months and it was devastating. I was so scared. Veronica hooked up an IV and sat by your bedside until you calmed down. The next several days you were still not yourself, you were pale and tired. Your body temperature was between 95 and 97. Melissa, the OT, came and spent time with you so you were not alone. I have been glad to have her, especially since she has been working overtime.
The remainder of the week you were restless and very uncomfortable. On Friday I noticed drainage from your ear and told the nurse. S he was going to contact Dr. McCagg and see what she wanted them to do. With the weekend coming they decided to put you on antibiotic drops and on Monday they were calling Dr. Meir for a consult.
Friday, Sept. 15th...You were very agitated and I believe you were having pain. Saturday and Sunday you were very quiet and your body temperature was running cold. The nurse warmed you up with blankets and warm tea.
Monday, Sept. 18th...You were quiet and very sleepy. They put you in bed at 4:30 and you went into a very deep sleep. You were cold and they once again warmed you up with blankets. I am not sure what is going on but the Dr. said she believes you have an infection. Now they just have to find it.
Saturday, September 1, 2007
August 20 - September 1, 2007
Things have remained the same for you. You are alert and focused and have been very healthy. We have enjoyed the end of the year barbecue and the time spent with Andrea.
On the 30th of August we will be going to the Turtle Back Zoo, one of Andrea’s ideas and one which the center thought was a great choice.
Melissa, the occupational therapy student, approached me and said she will be done working at Hartwyck on the 22nd of August. S he is free until the 14th of September so she will be working with you 10 hours a week until that time.
August 23rd, 2007... you have been running a temp since 2 a.m. and Dr. McCagg came in to insert an IV. You were in bed all day Saturday and still sick through the night. At 4 in the morning you were 104 and I decided to go to church early and come to the center. I am glad I did because your body temperature dropped to 87. I was very worried and it took hours for you to warm up. At 2:30 you were 95 and they decided to get you up. I covered you with a blanket and you were calm, very quiet and very congested.
Monday you were better, still congested and they still had the IV in but you were stable.
You continued to get stronger and were more responsive as the days went by.
Thursday, August 30th... you were well enough to go to the zoo. It has been several weeks since we saw Andrea, we are looking forward to it very much. There were 10 of us, 5 patients and 5 adults. It was a great day and we had so much fun. It was hot but there was a breeze and we trucked up those hills like troopers. The zoo was very accommodating and opened the pavilion so we could enjoy our lunch. One of the workers came in during that time and did a little show and had two animals for all to see. One was a baby alligator and the other a Boa. Aaron touched the Boa and was very attentive. I took a lot of pictures for all to see.
Friday, August 31st... Melissa came and spent time with you outside. You watched a basketball game and she said you were vocalizing. I came later and fed you for the first time in a week. I did not want to take any chances with all the congestion.
This is a big weekend, Labor day and the end of summer. I am until Tuesday. I took off Wednesday, Thursday and Friday as well. I have been busy doing things at home and then spending time with you.
I have been very busy in your room, it needs to be painted. I am going to leave it the same color on the bottom, red however I am changing the color on the top. I am going to paint it a light grey. I will put all your special plaques and trophies to be seen by all and put all your stuffed bears and gifts you received after your accident.
September 1st... I went on your website and viewed your guestbook and was pleasantly surprised. There were entries made by two of your classmates, Melissa Shaw and Amy Kahaly. It was so great to hear from them and even better was their visit to see you at the center on Saturday. They arrived at 4 pm and I got to leave so Dad and I could go to a barbecue and you got to spend time with them.
Melissa is a Special Education Student and this is her final year. She will be student teaching in Roxbury. She also gave me some exciting news that will help you so much. She belongs to a special education group of 15 students who need to do 200 hours working with special needs. They are available during the day to work with you. She is emailing them and will get back to me and hopefully we will be able to set something up. This is so exciting not only for them but for you as well.
On the 30th of August we will be going to the Turtle Back Zoo, one of Andrea’s ideas and one which the center thought was a great choice.
Melissa, the occupational therapy student, approached me and said she will be done working at Hartwyck on the 22nd of August. S he is free until the 14th of September so she will be working with you 10 hours a week until that time.
August 23rd, 2007... you have been running a temp since 2 a.m. and Dr. McCagg came in to insert an IV. You were in bed all day Saturday and still sick through the night. At 4 in the morning you were 104 and I decided to go to church early and come to the center. I am glad I did because your body temperature dropped to 87. I was very worried and it took hours for you to warm up. At 2:30 you were 95 and they decided to get you up. I covered you with a blanket and you were calm, very quiet and very congested.
Monday you were better, still congested and they still had the IV in but you were stable.
You continued to get stronger and were more responsive as the days went by.
Thursday, August 30th... you were well enough to go to the zoo. It has been several weeks since we saw Andrea, we are looking forward to it very much. There were 10 of us, 5 patients and 5 adults. It was a great day and we had so much fun. It was hot but there was a breeze and we trucked up those hills like troopers. The zoo was very accommodating and opened the pavilion so we could enjoy our lunch. One of the workers came in during that time and did a little show and had two animals for all to see. One was a baby alligator and the other a Boa. Aaron touched the Boa and was very attentive. I took a lot of pictures for all to see.
Friday, August 31st... Melissa came and spent time with you outside. You watched a basketball game and she said you were vocalizing. I came later and fed you for the first time in a week. I did not want to take any chances with all the congestion.
This is a big weekend, Labor day and the end of summer. I am until Tuesday. I took off Wednesday, Thursday and Friday as well. I have been busy doing things at home and then spending time with you.
I have been very busy in your room, it needs to be painted. I am going to leave it the same color on the bottom, red however I am changing the color on the top. I am going to paint it a light grey. I will put all your special plaques and trophies to be seen by all and put all your stuffed bears and gifts you received after your accident.
September 1st... I went on your website and viewed your guestbook and was pleasantly surprised. There were entries made by two of your classmates, Melissa Shaw and Amy Kahaly. It was so great to hear from them and even better was their visit to see you at the center on Saturday. They arrived at 4 pm and I got to leave so Dad and I could go to a barbecue and you got to spend time with them.
Melissa is a Special Education Student and this is her final year. She will be student teaching in Roxbury. She also gave me some exciting news that will help you so much. She belongs to a special education group of 15 students who need to do 200 hours working with special needs. They are available during the day to work with you. She is emailing them and will get back to me and hopefully we will be able to set something up. This is so exciting not only for them but for you as well.
Saturday, August 18, 2007
August 1-18, 2007
It has been some time since I have written and there is much to tell. Aaron continues to thrive and has been extremely healthy and in great spirits. He is alert and focused, he is eating soft foods daily and he is enjoying his time with his teacher, Andrea, very much.
Andrea comes 4 days a week from 12:30 to 3:00 and works with him continuously. She does many things with him such as, reading, art projects and command following. She does a lot with visual and tries to have him distinguish between different objects. Aaron cannot vocalize but he can use his eyes or his right hand to point.
Andrea will be leaving on the 14th of August and it will be a sad day for Aaron. We will miss her terribly but before she goes they will be taking a trip on the 13th of August to Roosevelt Park. It will be a special day for both of them to have this time together and create wonderful memories.
A lot has been happening at the center because of the airing of the new procedure called Deep Brain Stimulation. It has been used on Parkinson’s patients but now it has been tried on a Traumatic Brain Injury Patient. The news is worldwide and there has been a lot in the media. People are calling from all over the world to tell their stories.
The center has been taking a long hard look at the patients there to determine if anyone qualifies. The criteria is very stringent and the guidelines must be met in order to be eligible.
We do not know what the future holds for Aaron but we pray everyday for that one miracle for Aaron.
Friday, August 10th... I went away again for the weekend. I was invited to Lanoka Harbor to spend some time with Andrea. It was wonderful, the weather on Friday was a downpour but Saturday and Sunday were gorgeous. We did fun things, laughed a lot and I ate clams on a ½ shell raw. They were quite good and I had some wine spritzer. We went to the boardwalk on Saturday night to see a concert and Sunday we went to church and I went to Andrea’s bible study group. It was a blessed weekend and I got to let go for a little while and enjoy the time. I told Andrea it was the greatest gift she could ever give me.
One of the nicest things for me was the time you got to spend with your sister. She came Saturday afternoon and spent so much time with you and enjoyed it so much. She said you smiled a lot and were alert and focused the entire afternoon. I was so happy to hear that she enjoyed her time with you so much.
Monday August, 13th... and today is your big day at the park. Andrea will be coming by 10:30 and you will be leaving at 11:00. The park is not far and the weather is beautiful. You will be fishing and feeding the geese and taking a nature walk. Andrea said you ended up on the tennis courts, too bad we did not think to send your racket. I asked Andrea to take a lot of pictures so that you and her can share special memories together.
Tuesday, August 14th... today my heart is very heavy because it is time for Andrea to move on. She has made so many sacrifices to be with you this summer. She worked so hard and never once complained, she was always there and very committed not only to her job but to you especially. Her compassion and her commitment never went unnoticed. You were so attentive to her when she read to you and would acknowledge with a squeeze of the hand and your smile. She will be missed! Thank you Andrea!
Today I had 3 interviews for a new job in my department. It will be a promotion if I should get it. There were 10 processors that applied and we will find out the week of August 27th.
The rest of this week you have been so calm, alert and focused. I am so proud of you Aaron, you continue to fight very hard and your smile says it all.
Andrea comes 4 days a week from 12:30 to 3:00 and works with him continuously. She does many things with him such as, reading, art projects and command following. She does a lot with visual and tries to have him distinguish between different objects. Aaron cannot vocalize but he can use his eyes or his right hand to point.
Andrea will be leaving on the 14th of August and it will be a sad day for Aaron. We will miss her terribly but before she goes they will be taking a trip on the 13th of August to Roosevelt Park. It will be a special day for both of them to have this time together and create wonderful memories.
A lot has been happening at the center because of the airing of the new procedure called Deep Brain Stimulation. It has been used on Parkinson’s patients but now it has been tried on a Traumatic Brain Injury Patient. The news is worldwide and there has been a lot in the media. People are calling from all over the world to tell their stories.
The center has been taking a long hard look at the patients there to determine if anyone qualifies. The criteria is very stringent and the guidelines must be met in order to be eligible.
We do not know what the future holds for Aaron but we pray everyday for that one miracle for Aaron.
Friday, August 10th... I went away again for the weekend. I was invited to Lanoka Harbor to spend some time with Andrea. It was wonderful, the weather on Friday was a downpour but Saturday and Sunday were gorgeous. We did fun things, laughed a lot and I ate clams on a ½ shell raw. They were quite good and I had some wine spritzer. We went to the boardwalk on Saturday night to see a concert and Sunday we went to church and I went to Andrea’s bible study group. It was a blessed weekend and I got to let go for a little while and enjoy the time. I told Andrea it was the greatest gift she could ever give me.
One of the nicest things for me was the time you got to spend with your sister. She came Saturday afternoon and spent so much time with you and enjoyed it so much. She said you smiled a lot and were alert and focused the entire afternoon. I was so happy to hear that she enjoyed her time with you so much.
Monday August, 13th... and today is your big day at the park. Andrea will be coming by 10:30 and you will be leaving at 11:00. The park is not far and the weather is beautiful. You will be fishing and feeding the geese and taking a nature walk. Andrea said you ended up on the tennis courts, too bad we did not think to send your racket. I asked Andrea to take a lot of pictures so that you and her can share special memories together.
Tuesday, August 14th... today my heart is very heavy because it is time for Andrea to move on. She has made so many sacrifices to be with you this summer. She worked so hard and never once complained, she was always there and very committed not only to her job but to you especially. Her compassion and her commitment never went unnoticed. You were so attentive to her when she read to you and would acknowledge with a squeeze of the hand and your smile. She will be missed! Thank you Andrea!
Today I had 3 interviews for a new job in my department. It will be a promotion if I should get it. There were 10 processors that applied and we will find out the week of August 27th.
The rest of this week you have been so calm, alert and focused. I am so proud of you Aaron, you continue to fight very hard and your smile says it all.
Monday, July 30, 2007
July 30, 2007
I came my regular time and Andrea called me but had to leave early. Her Grandma is in the hospital and she had to go home to take care of Lacey. I stayed for a while but then left early for my Drs. Appt. I have borderline diabetes and now have to make some drastic changes if I want to feel better and prevent other things from happening.
Sunday, July 29, 2007
July 29, 2007
I went to Grace church in the morning and enjoyed it very much. I then came down to see you and got caught in a terrible rain storm. There was flooding and thunder and lightening. I was afraid my car was going to stall out but I got to Hartwyck okay. I called dad and told him to re-think coming because of the floods. It did eventually stop raining and cleared out but it got extremely muggy.
You had a surprise visit from the Caruso’s and you seemed to enjoy your time with Edna a lot. She has this way of drawing you to her and you respond so well.
You had a surprise visit from the Caruso’s and you seemed to enjoy your time with Edna a lot. She has this way of drawing you to her and you respond so well.
Saturday, July 28, 2007
Week of July 23, 2007
Monday you were very alert and focused. You ate well and you have been responding well with your sessions with Andrea.
Tuesday, July 24th... I had to go to the Health center for a meeting with the Dr. to discuss my blood results. I have elevated sugar levels and I have been light headed and getting headaches. I need to make an appt. with Dr. Trader to discuss and meet with a nutritionist to consult. You looked great as usual and in very good spirits.
Wednesday, July 25th... I had closing at work and could not come to see you but Andrea was kind enough to stay until 4. You did well and were very relaxed in the dayroom listening to music.
Thursday, July 26th... You awoke with a temp. and Elsie gave you something for comfort. You were okay but very pale and quiet. When I got there you were with Andrea and she took you in the dayroom to listen to Rich play the quitar and sing. You seem to really enjoy it and even managed to shake the moracco’s.
Friday, July 27th... I came at 12:30 to check on you but left by 2 to run some errands. Matt stayed the rest of the afternoon.
Saturday, July 28th... You were very alert and focused. I was not happy because they leave you in bed until after lunch and that is too long. I like you up by 11 or 11:30 but I don’t always get what I wish for. Dad came down and spent some time with you as well. It was not a good day to go outside there was a lot of heat and humidity
Tuesday, July 24th... I had to go to the Health center for a meeting with the Dr. to discuss my blood results. I have elevated sugar levels and I have been light headed and getting headaches. I need to make an appt. with Dr. Trader to discuss and meet with a nutritionist to consult. You looked great as usual and in very good spirits.
Wednesday, July 25th... I had closing at work and could not come to see you but Andrea was kind enough to stay until 4. You did well and were very relaxed in the dayroom listening to music.
Thursday, July 26th... You awoke with a temp. and Elsie gave you something for comfort. You were okay but very pale and quiet. When I got there you were with Andrea and she took you in the dayroom to listen to Rich play the quitar and sing. You seem to really enjoy it and even managed to shake the moracco’s.
Friday, July 27th... I came at 12:30 to check on you but left by 2 to run some errands. Matt stayed the rest of the afternoon.
Saturday, July 28th... You were very alert and focused. I was not happy because they leave you in bed until after lunch and that is too long. I like you up by 11 or 11:30 but I don’t always get what I wish for. Dad came down and spent some time with you as well. It was not a good day to go outside there was a lot of heat and humidity
Sunday, July 22, 2007
July 21st-22nd, 2007
You were very alert and focused. I tried to do all the things Andrea works on with you during the week. Sometimes you did not co-operate but that was okay. I like to come and just be with you and chill. You did well with the tennis racket and you were trying very hard to vocalize.
Friday, July 20, 2007
July 20, 2007
I took the day off and went home after work. Matt came and spent time with you so I could run some errands. You were very active and apparently restless at times. I called Marge, the massage therapist to come and work with you for a short time with the hope it will relax you and you will be more comfortable. It seems to work everytime.
Thursday, July 19, 2007
July 19, 2007
Today is Aun’t Nancy’s birthday. You have been doing very well this week, you are alert, focused and enjoying your time with Andrea. She is working on you being more independent and trying to assist you in feeding yourself and brushing your teeth. So far I must say you seem to understand everything and continue to thrive. You have been very active physically and when she places the tennis racket in your hand you will attempt to move it. Not an easy task for you to accomplish.
Wednesday, July 18, 2007
July 18, 2007
I have a car wash, fundraiser, team builder at work. I am the “Sunshine Crew” wearing yellow and we are raising money for St. Jude’s Children’s Research Hospital. It should be fun, there will be 200 workers and it is open to all employees with a $5.00 donation per car.
Tuesday, July 17, 2007
July 17, 2007
I asked Andrea to let me know how you were when she arrived and she sent me a picture of you saying you were fine. You looked great and when I arrived you were playing a musical instrument to Bon Jovi. You looked awesome and extremely relaxed and smiling.
Monday, July 16, 2007
July 16, 2007
I came to the center early to take you to the hospital for a special test. You have to be sedated so you are very still on the table and you will be injected with a dye. We won’t have results for several days, I hope you will be okay.
Friday, July 13, 2007
July 13,2007
Today is Friday, July 13th and it is PopPop’s 85th birthday. I will not be seeing him today, we will be celebrating next weekend. I was hoping to bring you with us but they are not going until 6 pm and that will be too late.
I am leaving today at 2 to go to Andrea’s house for the weekend. I am really looking forward to the time spent with her and enjoying the change of pace and to be able to let go just a little bit. She is having a party for her Aunt on Saturday and we will be very busy but it will be a fun kind of busy. It will help me to forget for a short time and focus on other things. I will not know any one but I am sure I will be very comfortable and enjoy myself.
Andrea has a beautiful home on the water, in the morning when I got up I would sit outside and the water was very still and the scenery was breath-taking. There was such peacefulness and calm that was so soothing. I thought about you often and how much you would have enjoyed being there. I could see you crabbing and jumping off the dock. You always did have a good time wherever you went. I will never forget the time over Sally’s when you went jet skiing and the jet ski sunk. I was cracking up and you were so mad because you had to come back to the dock.
On Sunday, Andrea and I went to her church and I must say I enjoyed it very much. There was a lot of singing and a sermon and of course I cried. I always do in church. I may find a church by me and try it to see if I like it better.
I can’t help but wonder sometimes where you would be today, would you have finished college and what would your major have been. Would you still be part of the church youth group and would you be living at home. All these thoughts that really don’t matter, what matters is today and making sure you have everything you need. That your life as it is will be filled with love and compassion. That you will stay healthy and strong and continue to fight hard whatever comes your way.
I am leaving today at 2 to go to Andrea’s house for the weekend. I am really looking forward to the time spent with her and enjoying the change of pace and to be able to let go just a little bit. She is having a party for her Aunt on Saturday and we will be very busy but it will be a fun kind of busy. It will help me to forget for a short time and focus on other things. I will not know any one but I am sure I will be very comfortable and enjoy myself.
Andrea has a beautiful home on the water, in the morning when I got up I would sit outside and the water was very still and the scenery was breath-taking. There was such peacefulness and calm that was so soothing. I thought about you often and how much you would have enjoyed being there. I could see you crabbing and jumping off the dock. You always did have a good time wherever you went. I will never forget the time over Sally’s when you went jet skiing and the jet ski sunk. I was cracking up and you were so mad because you had to come back to the dock.
On Sunday, Andrea and I went to her church and I must say I enjoyed it very much. There was a lot of singing and a sermon and of course I cried. I always do in church. I may find a church by me and try it to see if I like it better.
I can’t help but wonder sometimes where you would be today, would you have finished college and what would your major have been. Would you still be part of the church youth group and would you be living at home. All these thoughts that really don’t matter, what matters is today and making sure you have everything you need. That your life as it is will be filled with love and compassion. That you will stay healthy and strong and continue to fight hard whatever comes your way.
Monday, July 9, 2007
Week of July 9, 2007
You have been very alert and focused. We did not go to the park on the 6th because the van was not available. We will have to try for another day when the weather is nice. Dad and I watched the documentary and I must say it was most difficult to watch. The past 5 years did not prepare me for what I saw in the film. I pray it will be seen by many and make people more aware of the trauma we live on a daily basis.
Iwill be going away for the weekend. The first time I will be away for 2 nights but I know you will be fine. Matt will be there Friday afternoon and Dad on Saturday. I will be back on Sunday and come and visit with you on my way home.
You had another great week with Andrea, you seem to enjoy doing projects, listening to your CD’s and especially when she reads to you.
Iwill be going away for the weekend. The first time I will be away for 2 nights but I know you will be fine. Matt will be there Friday afternoon and Dad on Saturday. I will be back on Sunday and come and visit with you on my way home.
You had another great week with Andrea, you seem to enjoy doing projects, listening to your CD’s and especially when she reads to you.
Thursday, July 5, 2007
July 4-6, 2007
July 4th... Dad and I spent the afternoon with you. You have been doing very well, you are alert, focused and eating well. You have been enjoying your time with Andrea, most especially when she reads to you and you listen to the audio cd’s she bought for you. Your facial expressions tell it all.
Monday we went to the hospital for a cat scan and everything went well. We saw people who took care of you two years ago when you were very ill. They were so happy to see you so alert and focused. The results of the cat scan were good, nothing changed.
July 3rd there is a HBO documentary that Dad and I will be watching. It is filmed at Hartwyck at Oak Tree where you reside. It will be very difficult to watch but it is very important that as many people as possible get to see it. People need to know at least in part the difficulties families face each day with brain injury. The show will air throughout the month of July and I will watch it every chance I get.
We have been blessed with beautiful weather and I have been able to take you outside on the patio. You continue to do well, you have been so content and have this peacefulness and calm that is very comforting to me.
Andrea did not have to teach summer school Monday or Tuesday and was able to come in the morning to be with you. Monday she got to take you to a barbecue on the patio and Tuesday she got to see you on the tilt table.
On the 16th of July you will be going to JFK hospital for a special test ordered by Dr. Medina. The past two years you have been having episodes of brain storming with high fevers and profuse sweating. They have to put you on a cooling blanket and every time this happens your blood work shows elevated liver enzymes. You also appear to be in pain especially on your right side. The test is called MRCP and it is a MRI of the pancreas, liver, kidneys, gall bladder. The doctors are now thinking there is something triggering the episodes.
I have Thursday and Friday off this week and I am looking forward to the time to myself. I will be down to see you of course but I can now get some things done in the house. Our kitchen, living room and dining room are now completely done and I now have the task of putting everything back.
July 6th... Susan, Sean, you and me will be going on a day trip. Not sure where it will all depend on the weather. If it is nice we will be going to Roosevelt Park otherwise we will go to the mall. I have some shopping I can do so it will be fun either way.
Monday we went to the hospital for a cat scan and everything went well. We saw people who took care of you two years ago when you were very ill. They were so happy to see you so alert and focused. The results of the cat scan were good, nothing changed.
July 3rd there is a HBO documentary that Dad and I will be watching. It is filmed at Hartwyck at Oak Tree where you reside. It will be very difficult to watch but it is very important that as many people as possible get to see it. People need to know at least in part the difficulties families face each day with brain injury. The show will air throughout the month of July and I will watch it every chance I get.
We have been blessed with beautiful weather and I have been able to take you outside on the patio. You continue to do well, you have been so content and have this peacefulness and calm that is very comforting to me.
Andrea did not have to teach summer school Monday or Tuesday and was able to come in the morning to be with you. Monday she got to take you to a barbecue on the patio and Tuesday she got to see you on the tilt table.
On the 16th of July you will be going to JFK hospital for a special test ordered by Dr. Medina. The past two years you have been having episodes of brain storming with high fevers and profuse sweating. They have to put you on a cooling blanket and every time this happens your blood work shows elevated liver enzymes. You also appear to be in pain especially on your right side. The test is called MRCP and it is a MRI of the pancreas, liver, kidneys, gall bladder. The doctors are now thinking there is something triggering the episodes.
I have Thursday and Friday off this week and I am looking forward to the time to myself. I will be down to see you of course but I can now get some things done in the house. Our kitchen, living room and dining room are now completely done and I now have the task of putting everything back.
July 6th... Susan, Sean, you and me will be going on a day trip. Not sure where it will all depend on the weather. If it is nice we will be going to Roosevelt Park otherwise we will go to the mall. I have some shopping I can do so it will be fun either way.
Thursday, June 28, 2007
June 27-28, 2007
June 27th,... Once again you were very alert and focused. You continue to thrive and you have this peacefulness about you and it is as though you are content in your own world. Your smile brings such joy and I truly believe it is your way of saying everything is okay.
June 28th... I arrived about 2:45, just in time to see Andrea before she had to leave. It was another great day and you have been responding so well. You enjoy the readings so much, your facial expressions tell all. It was a great week and I pray you will continue to grow.
June 28th... I arrived about 2:45, just in time to see Andrea before she had to leave. It was another great day and you have been responding so well. You enjoy the readings so much, your facial expressions tell all. It was a great week and I pray you will continue to grow.
Tuesday, June 26, 2007
June 23-26, 2007
June 23rd... When I arrived you were up in the chair but very sleepy. Your eyes were very red and irritated and Elsie your nurse said you were very sleepy and somewhat lethargic. Sometimes after going through the episodes of storming and high fevers it wipes you out and you need time to recover. However two days of sleeping is a little too much and there was some legitimate concern. I was very worried about you, I took you outside for a while but you did not respond. When they put you in bed you did not wake up, respiratory came in to give you a breathing treatment because you have been some what congested.
June 24th..., I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
June 25th... You were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. I can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
June 26th... I arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and I showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
I had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
June 24th..., I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
June 25th... You were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. I can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
June 26th... I arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and I showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
I had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
June 23-26, 2007
when I arrived you were up in the chair but very sleepy. Your eyes were very red and irritated and Elsie your nurse said you were very sleepy and somewhat lethargic. Sometimes after going through the episodes of storming and high fevers it wipes you out and you need time to recover. However two days of sleeping is a little too much and there was some legitimate concern. I was very worried about you, I took you outside for a while but you did not respond. When they put you in bed you did not wake up, respiratory came in to give you a breathing treatment because you have been some what congested.
Sunday, June 24th, I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
Monday, June 25th, 2007 you were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. Mom can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
Tuesday, June 26th, Mom arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and Mom showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
Mom had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
Sunday, June 24th, I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
Monday, June 25th, 2007 you were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. Mom can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
Tuesday, June 26th, Mom arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and Mom showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
Mom had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
Friday, June 22, 2007
June 22, 2007
I stayed at the center until very late. You were not well and your temp was high and you were extremely sweaty. They put you on the cooling blanket and gave you Ativan to help calm you. They are now certain there is something triggering the storming. They are taking a closer look at your liver functions and will be ordering further testing.
Thursday, you had a rough morning and they did not get you up until noon. When I arrived at 3 you were very calm and with the teacher. She was reading to you and you seemed to be enjoying it very much. After she left we went outside, it was beautiful. You seemed to be doing well but it was short-lived. You started to become agitated and uncomfortable and when they put you in bed you had a hard time settling down. After a time they had to give you medication to try to calm you but your temp went up to 102.9 and you were very sweaty. You finally fell asleep and the aides came to change you and make you more comfortable. I did not leave until very late again and was extremely emotional and very worried about you. It breaks my heart and I feel so helpless because all I can do is watch and try to calm you
Thursday, you had a rough morning and they did not get you up until noon. When I arrived at 3 you were very calm and with the teacher. She was reading to you and you seemed to be enjoying it very much. After she left we went outside, it was beautiful. You seemed to be doing well but it was short-lived. You started to become agitated and uncomfortable and when they put you in bed you had a hard time settling down. After a time they had to give you medication to try to calm you but your temp went up to 102.9 and you were very sweaty. You finally fell asleep and the aides came to change you and make you more comfortable. I did not leave until very late again and was extremely emotional and very worried about you. It breaks my heart and I feel so helpless because all I can do is watch and try to calm you
Sunday, June 17, 2007
June 17, 2007
It is Father’s Day and I came early to spend time with you. You were sleepy but stayed awake the afternoon. We did not go outside it was too hot and Dad and Melissa went to Pop Pop’s and I met them there later.
Monday, you were very agitated in the morning and running a temp. I came down to see you and we spent time together. You were very calm but extremely exhausted from all the brain storming. Tuesday morning you were not feeling well and Dr. Meir came to see you. You have double ear infections which definitely attribute to your fevers and pain.
Monday, you were very agitated in the morning and running a temp. I came down to see you and we spent time together. You were very calm but extremely exhausted from all the brain storming. Tuesday morning you were not feeling well and Dr. Meir came to see you. You have double ear infections which definitely attribute to your fevers and pain.
Friday, June 15, 2007
June 15, 2007
You are finally feeling better even though you are still congested but alert and focused. I was able to take you outside and we spent quality time together. The weekend was the same for you, you were alert and focused and did very well eating. You are still running a low grade temp and I requested they bring in Dr. Meir to do an evaluation of your sinuses and ears. You still have tubes in your ears and often times they get infected.
Wednesday, June 13, 2007
June 13, 2007
If all is well with you we are going to the Somerset Patriots baseball game tonight...
At 11:30 I received a call from Valerie, she is the Recreational therapist who is taking us to the baseball game. She said you were not doing well and Dr. McCagg said you should not go to the game. I was unaware you were sick in bed and called the nurses station. The Dr. got on the phone and said you were running a temp and was very congested. They ordered a chest x-ray and she felt you were more relaxed and comfortable. When I arrived your temp was 101 and it had gone up to 102 earlier. You were pale and eyes were glassy and you were very congested. Respiratory was called in to deep suction you and you were on oxygen. Once they cleared your throat and gave you a respiratory treatment you settled down and went to sleep. I stayed for an hour to make sure you were okay and then I left. I called later in the evening and they said you were still sleeping. I hope you will do well the rest of the night and feel better tomorrow
At 11:30 I received a call from Valerie, she is the Recreational therapist who is taking us to the baseball game. She said you were not doing well and Dr. McCagg said you should not go to the game. I was unaware you were sick in bed and called the nurses station. The Dr. got on the phone and said you were running a temp and was very congested. They ordered a chest x-ray and she felt you were more relaxed and comfortable. When I arrived your temp was 101 and it had gone up to 102 earlier. You were pale and eyes were glassy and you were very congested. Respiratory was called in to deep suction you and you were on oxygen. Once they cleared your throat and gave you a respiratory treatment you settled down and went to sleep. I stayed for an hour to make sure you were okay and then I left. I called later in the evening and they said you were still sleeping. I hope you will do well the rest of the night and feel better tomorrow
Tuesday, June 12, 2007
June 12, 2007
They decided to keep you in bed for a while only it turned out to be almost all day. When I arrived at 3 I asked them to get you up so we could go outside and you could sit up for a while. It took you a long time to settle down and go to sleep that night because your schedule was all thrown off.
Thursday, June 7, 2007
June 7, 2007
I had training and left at 4 pm to come to the barbecue. When I arrived you were sound asleep in the chair. I could not arouse you but I took you outside anyway because it was a beautiful day and the barbecue was on the patio. You never did wake up through all the noise and music so I decided to bring you upstairs so the aides could put you in bed. I was very concerned because you never even flinched when they moved you and changed you and your coloring was very pale. The nurse took your vitals and your respirations were low but your o2 was good. You never woke up that night and Mom stayed for a while to make sure you were okay. We even had to put our hands on your chest to make sure you were breathing.
Friday you were better and much more alert. We got to go outside and you ate a little for me.
Saturday you were alert as well but a little more restless and slightly agitated. You calmed down and we spent the afternoon together but when they put you in bed you were very restless and having a difficult time calming down. Sometimes I truly believe you are trying to hard to break through this silence and be able to speak.
Sunday morning the nurse said you were very agitated and had a temp. They had to give you Ativan to calm you and put you on the cooling blanket to get down the temp. You were better after several hours and they were able to get you up in the chair. We went outside and you slept for a while, when you woke up Dad had arrived and you were very alert and responsive. Unfortunately, it was short lived. You became very agitated by dinner time and the nurse gave you Ativan once again. You were put to bed but the agitation got much worse and you spiked a temp of 102. They decided to put you on the cooling blanket and the Dr. ordered Ativan and Morphine injections. You were extremely agitated and sweating, it is so hard to watch you like that. I feel so helpless and can do nothing but try to calm you down. After several hours you fell asleep, the aides came in to change you because everything gets soaked from sweating. You slept all night and for the most part the next day. The medication lasts for some time and it takes a day or two for you to come completely out of it.
Friday you were better and much more alert. We got to go outside and you ate a little for me.
Saturday you were alert as well but a little more restless and slightly agitated. You calmed down and we spent the afternoon together but when they put you in bed you were very restless and having a difficult time calming down. Sometimes I truly believe you are trying to hard to break through this silence and be able to speak.
Sunday morning the nurse said you were very agitated and had a temp. They had to give you Ativan to calm you and put you on the cooling blanket to get down the temp. You were better after several hours and they were able to get you up in the chair. We went outside and you slept for a while, when you woke up Dad had arrived and you were very alert and responsive. Unfortunately, it was short lived. You became very agitated by dinner time and the nurse gave you Ativan once again. You were put to bed but the agitation got much worse and you spiked a temp of 102. They decided to put you on the cooling blanket and the Dr. ordered Ativan and Morphine injections. You were extremely agitated and sweating, it is so hard to watch you like that. I feel so helpless and can do nothing but try to calm you down. After several hours you fell asleep, the aides came in to change you because everything gets soaked from sweating. You slept all night and for the most part the next day. The medication lasts for some time and it takes a day or two for you to come completely out of it.
Monday, June 4, 2007
June 4, 2007
Several days have gone by and it is time to reflect on the past few days. You continue to be alert and focused and eating for me in the afternoons. I came down early on Friday so I could spend some time with you and then left at 3 pm. Matt came down and spent the rest of the afternoon so I could leave to do some shopping. Marge comes at 6 pm to give you a massage which you thoroughly enjoy. I have her come every other week and it helps to relax your muscles and it is very soothing.
When I arrived on Saturday around noon you were very vocal and still in bed. I asked the nurse to call your aide to get you up in the chair, you don’t do well in bed for long periods of time. Especially because you are in bed by 6 at night and up every day during the week by 10. You were getting restless and uncomfortable, it was great hearing your voice. When they first got you in the chair you were agitated and restless but I spent some time with you and calmed you down and you were fine the rest of the day.
Melissa went on a business trip to New York on Friday that turned into a nightmare for her. When she got to NY her computer crashed and she left her cell phone in the limo. Was not much fun for her and now she has to deal with the help desk to get a new computer. She has very important data and reports she needs for her meeting today and only an hour or so in the morning for them to get her set up.
This week I have training on Thursday from 11-4, not sure if I will make it down. They are having a barbecue on Thursday from 6-7:30 so I may come after training. Friday, I have PC Richards coming to install a new air conditioner in the living room wall, I am hoping they come in the morning so I can come down to see you in the afternoon.
It is a busy time at home, we are getting to the end of all the construction and painting. The new windows are in the living room and dining room and the trim is complete. Now your cousin Anthony has to finish painting. John is coming to install the oak railings and the new runner on the steps. It is looking great and I can’t wait for it all to be done. This has all been going on since January when they remodeled the kitchen. The hardwood floors look awesome, what a difference.
Wish that you could come home to enjoy it with us! Next I will start tackling your room, there is so much that needs to be done that has been untouched in 5 years. I think it is time.
When I arrived on Saturday around noon you were very vocal and still in bed. I asked the nurse to call your aide to get you up in the chair, you don’t do well in bed for long periods of time. Especially because you are in bed by 6 at night and up every day during the week by 10. You were getting restless and uncomfortable, it was great hearing your voice. When they first got you in the chair you were agitated and restless but I spent some time with you and calmed you down and you were fine the rest of the day.
Melissa went on a business trip to New York on Friday that turned into a nightmare for her. When she got to NY her computer crashed and she left her cell phone in the limo. Was not much fun for her and now she has to deal with the help desk to get a new computer. She has very important data and reports she needs for her meeting today and only an hour or so in the morning for them to get her set up.
This week I have training on Thursday from 11-4, not sure if I will make it down. They are having a barbecue on Thursday from 6-7:30 so I may come after training. Friday, I have PC Richards coming to install a new air conditioner in the living room wall, I am hoping they come in the morning so I can come down to see you in the afternoon.
It is a busy time at home, we are getting to the end of all the construction and painting. The new windows are in the living room and dining room and the trim is complete. Now your cousin Anthony has to finish painting. John is coming to install the oak railings and the new runner on the steps. It is looking great and I can’t wait for it all to be done. This has all been going on since January when they remodeled the kitchen. The hardwood floors look awesome, what a difference.
Wish that you could come home to enjoy it with us! Next I will start tackling your room, there is so much that needs to be done that has been untouched in 5 years. I think it is time.
Wednesday, May 30, 2007
May 30, 2007
I had a nice long weekend. I took an extra day off because I have so much vacation time. You have been doing very well, we spent a great weekend together, mostly outside because the weather was beautiful. Sometimes a little too hot but for the most part comfortable. You ate well and was very alert and focused. Monday we had a barbecue at PopPop’s that Melissa put together. PopPop has not been feeling very well for quite some time and has been going for tests.
Tuesday, May 29th Pop Pop went to the emergency room of the hospital and they found he had pneumonia. They wanted to keep him in but he fought them and wanted to go home. He will be okay I am sure, he now has antibiotics and will get some rest.
Andrea started classes at Seton Hall, she is working towards completing her Masters. She will do well I am sure because she is very committed. She will be starting her sessions with you on June 25th if her schedule permits. I am very excited for you because she will do great things with you and be very consistent. If you were living closer to Carteret she could work with you all year long. Wouldn’t that be something!
Melissa will be traveling quite a bit in the near future. She will be taking trips at least once a month for the remainder of the year. She will be extending some of her time while in Atlanta so she can visit with Shanon, Mike and the kids.
Aun’t Ginny wants me to go to Las Vegas to see Celine Dion. This is a most difficult decision for me to make. I have never been away more than one night and so much has happened this past year and a half that makes me hesitate. I have to think about this long and hard and make arrangements for you to have one on one if I should go. I have to get more details as to how long and when she is thinking about going.
Dad is planning his golf trip to Tampa this fall with all the guys. He will be gone for 5 or 6 days.
Tuesday, May 29th Pop Pop went to the emergency room of the hospital and they found he had pneumonia. They wanted to keep him in but he fought them and wanted to go home. He will be okay I am sure, he now has antibiotics and will get some rest.
Andrea started classes at Seton Hall, she is working towards completing her Masters. She will do well I am sure because she is very committed. She will be starting her sessions with you on June 25th if her schedule permits. I am very excited for you because she will do great things with you and be very consistent. If you were living closer to Carteret she could work with you all year long. Wouldn’t that be something!
Melissa will be traveling quite a bit in the near future. She will be taking trips at least once a month for the remainder of the year. She will be extending some of her time while in Atlanta so she can visit with Shanon, Mike and the kids.
Aun’t Ginny wants me to go to Las Vegas to see Celine Dion. This is a most difficult decision for me to make. I have never been away more than one night and so much has happened this past year and a half that makes me hesitate. I have to think about this long and hard and make arrangements for you to have one on one if I should go. I have to get more details as to how long and when she is thinking about going.
Dad is planning his golf trip to Tampa this fall with all the guys. He will be gone for 5 or 6 days.
Thursday, May 24, 2007
May 24, 2007
It is your big day. I have my month end closing and I have to work until 5 p.m. The last few days you have been awesome... alert, happy, calm, and eating pureed meals very well in the afternoon.
Melissa has been working on updating the website and has done a great job. She has incorporated a beautiful song when you open it that is so appropriate for you.
Today you will be going to Piscataway High School to be part of the Drivers Ed classes. You will be leaving at 11 a.m. and return at 3 p.m. This is your first trip without me but you will be in good hands with Aubree and Heather. Matt will be at the high school when you get there and he will take good care of you. I wrote your story for all to hear and Matt will read it to the classes. You will also have your photo album with pictures from before and now. I am so proud of you Aaron, I hope everything goes well and you can help even one person to see the consequences of their actions when driving. Matt will be taking pictures for me. I thought it would be nice to get some shots of you with the kids.
I will be thinking about you the entire time and hoping and praying all goes well. It is time for me to start trusting others that they will be there for you and give you what you need.
It is now 3 p.m. and I heard from Matt and he said everything went very well. You were great and the high school kids seemed to be truly moved by your story and seeing you there. Matt said you could hear a pin drop that is how quiet it was in the classroom.
I am so proud of you Aaron! God Bless!
Melissa has been working on updating the website and has done a great job. She has incorporated a beautiful song when you open it that is so appropriate for you.
Today you will be going to Piscataway High School to be part of the Drivers Ed classes. You will be leaving at 11 a.m. and return at 3 p.m. This is your first trip without me but you will be in good hands with Aubree and Heather. Matt will be at the high school when you get there and he will take good care of you. I wrote your story for all to hear and Matt will read it to the classes. You will also have your photo album with pictures from before and now. I am so proud of you Aaron, I hope everything goes well and you can help even one person to see the consequences of their actions when driving. Matt will be taking pictures for me. I thought it would be nice to get some shots of you with the kids.
I will be thinking about you the entire time and hoping and praying all goes well. It is time for me to start trusting others that they will be there for you and give you what you need.
It is now 3 p.m. and I heard from Matt and he said everything went very well. You were great and the high school kids seemed to be truly moved by your story and seeing you there. Matt said you could hear a pin drop that is how quiet it was in the classroom.
I am so proud of you Aaron! God Bless!
Monday, May 21, 2007
Five Years Ago Today
The day has finally arrived and it is 5 years since your accident. I have been reflecting on the past 5 years and trying to get all my thoughts and feelings down on paper to share with everyone. It is most difficult for me because I have always had a hard time expressing myself. When I think back to the different emotions one goes through during such a difficult time, they are endless.
When you open the website there is a poem called “Message to My Maker” written by my friend Liz from Aaron. She has a beautiful way with words and she has helped me to express my inner most thoughts in a poem called “Reflections”, which best describes the last 5 years.
When you open the website there is a poem called “Message to My Maker” written by my friend Liz from Aaron. She has a beautiful way with words and she has helped me to express my inner most thoughts in a poem called “Reflections”, which best describes the last 5 years.
Sunday, May 20, 2007
May 20, 2007
I arrived early today because I have to leave at 2 pm. Amanda gets married today and we have the reception at 5. I don’t know how it will be for me because I will be seeing Brian (your best friend since you were 2) for the first time in 3 ½ years.
Saturday, May 19, 2007
May 19, 2007
I will come around 1 pm and if the weather is nice we will go outside and sit on the patio. I will feed you around 3 or so and then Dad will come after Bernardsville. We keep praying you will be able to vocalize like you did before, but it has been a long time since we have heard any sounds.
Dad and I are having dinner with Liz and Pete tonight. They missed our 30th Anniversary party and want to get together. I am looking forward to seeing them again. It has been a long time.
Dad and I are having dinner with Liz and Pete tonight. They missed our 30th Anniversary party and want to get together. I am looking forward to seeing them again. It has been a long time.
Friday, May 18, 2007
May 18, 2007
I will not be coming to see you today. I have a lot of errands today and need some time to myself. I usually take Friday as my day because I have ½ days at work and it gives me time to do things. Matt will be coming and spend time with you this afternoon.
Thursday, May 17, 2007
May 17, 2007
The past few days have been very quiet. You are alert and calm. We spend most of our time together on the patio. Looking forward to the sidewalk being done so we can walk the nature path walkway and sit under the pergola. I did not come to see you yesterday because Aun’t Ginny was down in Edison for a meeting and she came to spend time with you. It was nice for me and I thought I would go home and get a lot of things done. When I arrived we did not have power so I could do nothing.
My writing is complete for the 21st and will be entered in your journal for Monday. I think it says it all and will be a reminder of what was and what will be.
Your trip to Piscataway High School on the 24th has been approved by Dr. McCagg. You will be going in the afternoon and be part of the Driver’s Ed classes. Matt will be going and he will read your story to the classes and they will view your photos.
My writing is complete for the 21st and will be entered in your journal for Monday. I think it says it all and will be a reminder of what was and what will be.
Your trip to Piscataway High School on the 24th has been approved by Dr. McCagg. You will be going in the afternoon and be part of the Driver’s Ed classes. Matt will be going and he will read your story to the classes and they will view your photos.
Monday, May 14, 2007
May 14, 2007
We had a great weekend together. The weather was beautiful and we spent all afternoon on the patio. Sunday was Mother’s Day and I came in the morning because I had to leave at 1:30 to go to brunch. I took you outside for a while and then I fed you lunch. You were great and in very good spirits. I enjoyed our time together so much. Nadia spent the rest of the afternoon with you and took you outside. It always makes me feel better knowing you are with someone.
I will be calling the high school today to cancel the meeting set for the 21st of May. That day marks your 5th anniversary of your accident and it will be difficult enough without going through with the meeting. They want to present you with a diploma but it will be too painful to go through.
I have been reflecting a lot on these past 5 years and have decided to write my thoughts in your journal to be posted for all to see.
I will be calling the high school today to cancel the meeting set for the 21st of May. That day marks your 5th anniversary of your accident and it will be difficult enough without going through with the meeting. They want to present you with a diploma but it will be too painful to go through.
I have been reflecting a lot on these past 5 years and have decided to write my thoughts in your journal to be posted for all to see.
Friday, May 11, 2007
May 11, 2007
Today is Grandma Jane’s birthday. Dad and I have to make plans to go to the cemetery and bring flowers for her. Sunday is Mother’s Day as well.
You continue to do well and the weather has been gorgeous, everyday we spend outside on the patio and enjoy the pondless waterfall. Matt asked if you can go on a field trip to Piscataway High School. He would like you to be a part of the Driver’s Ed classes and meet the kids and let them hear all about you. Aubree will be going as well and will read your story to them and bring your album with pictures. Hopefully it will help even one person to see what the consequences can be when you are driving. Dr. McCagg will have to clear your trip but you have been doing so well and I think it will be great for you.
You continue to do well and the weather has been gorgeous, everyday we spend outside on the patio and enjoy the pondless waterfall. Matt asked if you can go on a field trip to Piscataway High School. He would like you to be a part of the Driver’s Ed classes and meet the kids and let them hear all about you. Aubree will be going as well and will read your story to them and bring your album with pictures. Hopefully it will help even one person to see what the consequences can be when you are driving. Dr. McCagg will have to clear your trip but you have been doing so well and I think it will be great for you.
Wednesday, May 9, 2007
May 9, 2007
When I arrived at the center you were sleeping, you woke up when I spoke to you and stayed awake the rest of the afternoon. It was a beautiful day, 80 degrees and we spent most of the time on the patio. We then went inside and you ate so well for me and drank apple juice. I put your electric shaver in your right hand and guided you to shave your face. At first you resisted but then you calmed down and you put the shaver to your chin and tried so hard to move it around. We will keep trying, I believe you can do it.
PopPop called me at home, he had a scare at 4 in the morning. He had severe pains in his stomach and the chills and could not breathe. I told him to call one of us to come and be with him and not stay by himself. I worry about him so much, especially now Grandma is gone and he is alone. The doctor did blood work and checked his pacemaker and everything seems good. They are thinking it is a virus and bladder infection. We are going to have to keep a closer watch on him but it is hard for Mommy because I am far away and often times I am with you. Thankfully Aun’t Ginny is only 10 minutes away and Uncle Fred is 10 minutes as well
PopPop called me at home, he had a scare at 4 in the morning. He had severe pains in his stomach and the chills and could not breathe. I told him to call one of us to come and be with him and not stay by himself. I worry about him so much, especially now Grandma is gone and he is alone. The doctor did blood work and checked his pacemaker and everything seems good. They are thinking it is a virus and bladder infection. We are going to have to keep a closer watch on him but it is hard for Mommy because I am far away and often times I am with you. Thankfully Aun’t Ginny is only 10 minutes away and Uncle Fred is 10 minutes as well
Tuesday, May 8, 2007
May 8, 2007
I called the center around 10:30am to find out how you were and they said you had a temp earlier of 101. Fortunately, they were able to get it under control and you were fine. I took you outside and we enjoyed the patio and I fed you.
Monday, May 7, 2007
May 7, 2007
The past few days have been terrific with you. We have enjoyed the outside patio and you have been alert and responsive. Melissa got a new car, a Ford Escape. It is really nice and hopefully she will get better gas mileage than the Equinox. Dad had a cordizone injection in his elbow from tendenitis. It is very painful but it helps tremendously.
Sunday, May 6, 2007
May, 2007
Tuesday, May 1st, 2007... I got a txt message from Andrea that she made it into the Masters program at Seton Hall. She was very excited and I could not wait to hear all about it. At 4:30 my phone rings and it was Andrea telling me she was on her way and I shouldn’t move. She came to visit and you were still up and she got to spend quality time with you. You have been doing awesome and your smile and facial expressions told it all.
Andrea visited for several hours and then she prayed with you. She is a very spiritual person and has helped me to get through some rough times. After our visit we went to dinner to celebrate her acceptance in Seton Hall.
What a blessed day it was for all of us.
Today is May 3rd... You continue to thrive and when I look at you Aaron, I feel you are processing. There is something different about you and I truly believe you are comprehending and try very hard to communicate.
You are now off of the medications Dr. Medina recommended. I do not see a difference in your alert level which is a good thing. I believe the Ridlin has helped you a great deal. We will have to wait and see if Dr. McCagg decides to order something in addition to the Ridlin.
Andrea visited for several hours and then she prayed with you. She is a very spiritual person and has helped me to get through some rough times. After our visit we went to dinner to celebrate her acceptance in Seton Hall.
What a blessed day it was for all of us.
Today is May 3rd... You continue to thrive and when I look at you Aaron, I feel you are processing. There is something different about you and I truly believe you are comprehending and try very hard to communicate.
You are now off of the medications Dr. Medina recommended. I do not see a difference in your alert level which is a good thing. I believe the Ridlin has helped you a great deal. We will have to wait and see if Dr. McCagg decides to order something in addition to the Ridlin.
Monday, April 30, 2007
April, 2007
April 11, 2007, these past few days you have been so calm and alert. Tara, your speech therapist has ordered a pureed tray to be ready when I come at 2:30 so I can start feeding you once again. You have been eating fruits and yogurts but I wanted to revisit giving you pureed dinners. Also, you have been taking juices off of a spoon and practicing with a straw. Everything in good time, patience has never been one of my strong suits. You did very well for the first time with mashed potatoes and vegetables, you also ate the cup of pureed fruit and drank some juice. I am very happy!
You have been full of smiles and there is a peacefulness about you that is very different from anything I have seen in the past. I am not sure what is going on but it makes me happy to see you so relaxed and at peace.
I am on vacation the week of April 16th. Melissa has flown to Atlanta to be with Shanon and Mike for her birthday. She is now 28 years old. The weather is very cold, windy and rainy. We are going to have a lot of flooding and uncertainty with road conditions. The state has declared an emergency and asked people to stay off the roads unless it is necessary.
Today is Sunday, April 15th... I always come and see you but not today. I did go to Church but I am concerned about the long drive to the center and the road conditions. Dad and I decided to stay home knowing full well you are okay.
Monday, April 16th... I came down in the afternoon after the weather calmed down and the roads cleared up. You were doing well and very alert. You were responding to me and reaching out to me with your right arm and touching my face. You ate well and were very focused. You seemed to be trying very hard.
The next couple of days you were the same and I must say I enjoyed it very much. On Wednesday you were very vocal and the nurse came in to give you your meds. She was enjoying you very much and how attentive and vocal you were. You started to get very restless and some what agitated. I felt you were trying very hard to communicate but unfortunately you went in to full blown storming. You became very sweaty and agitated and they had to give you Ativan to help calm you. Your temp was rising and I was very upset. Veronica set up an IV fluid for you and they packed you in ice. Fortunately, this episode only lasted approximately 2 hours and you fell asleep. They did not have to give you morphine which I was very glad about.
The next few days you were very focused and eating well for me. You continue to vocalize and I truly believe you are trying to process things. Your smile tells all.
When I arrived on Sunday, April 22nd you were still in bed and had been running a temp. You were somewhat agitated and sweaty but fortunately they got in under control immediately. You rested and calmed down and we then got you in the chair. Dad came later and we visited and went outside, it was so beautiful. The weather for the next few days is going to be high 70’s. We are enjoying the patio very much.
On the way home from the center I received a call from Andrea, she gave me such wonderful news. She will be coming this summer to work with you 10 hours a week. I was so thrilled and thanked God for answering my prayers. She will bring so much joy and fun to you during your time together.
April 24th, 2007... I got a surprise call from Andrea that she was on her way. You were already in bed but she got to see you anyway. You were sound asleep and very peaceful but sometimes you looked as though you were faking. We know how much you love to ignore people especially when you don’t want to be bothered. Andrea spent a long time with us and I was very happy to see her.
For the last few weeks you have been so great. You are alert and very calm, you are eating well and we have a lot of fun together.
My company volunteers came down to your center on the 25th of April and we build the Pergola and arbor and landscaped. It was a great day and we had good weather and it looks beautiful.
You have been full of smiles and there is a peacefulness about you that is very different from anything I have seen in the past. I am not sure what is going on but it makes me happy to see you so relaxed and at peace.
I am on vacation the week of April 16th. Melissa has flown to Atlanta to be with Shanon and Mike for her birthday. She is now 28 years old. The weather is very cold, windy and rainy. We are going to have a lot of flooding and uncertainty with road conditions. The state has declared an emergency and asked people to stay off the roads unless it is necessary.
Today is Sunday, April 15th... I always come and see you but not today. I did go to Church but I am concerned about the long drive to the center and the road conditions. Dad and I decided to stay home knowing full well you are okay.
Monday, April 16th... I came down in the afternoon after the weather calmed down and the roads cleared up. You were doing well and very alert. You were responding to me and reaching out to me with your right arm and touching my face. You ate well and were very focused. You seemed to be trying very hard.
The next couple of days you were the same and I must say I enjoyed it very much. On Wednesday you were very vocal and the nurse came in to give you your meds. She was enjoying you very much and how attentive and vocal you were. You started to get very restless and some what agitated. I felt you were trying very hard to communicate but unfortunately you went in to full blown storming. You became very sweaty and agitated and they had to give you Ativan to help calm you. Your temp was rising and I was very upset. Veronica set up an IV fluid for you and they packed you in ice. Fortunately, this episode only lasted approximately 2 hours and you fell asleep. They did not have to give you morphine which I was very glad about.
The next few days you were very focused and eating well for me. You continue to vocalize and I truly believe you are trying to process things. Your smile tells all.
When I arrived on Sunday, April 22nd you were still in bed and had been running a temp. You were somewhat agitated and sweaty but fortunately they got in under control immediately. You rested and calmed down and we then got you in the chair. Dad came later and we visited and went outside, it was so beautiful. The weather for the next few days is going to be high 70’s. We are enjoying the patio very much.
On the way home from the center I received a call from Andrea, she gave me such wonderful news. She will be coming this summer to work with you 10 hours a week. I was so thrilled and thanked God for answering my prayers. She will bring so much joy and fun to you during your time together.
April 24th, 2007... I got a surprise call from Andrea that she was on her way. You were already in bed but she got to see you anyway. You were sound asleep and very peaceful but sometimes you looked as though you were faking. We know how much you love to ignore people especially when you don’t want to be bothered. Andrea spent a long time with us and I was very happy to see her.
For the last few weeks you have been so great. You are alert and very calm, you are eating well and we have a lot of fun together.
My company volunteers came down to your center on the 25th of April and we build the Pergola and arbor and landscaped. It was a great day and we had good weather and it looks beautiful.
April, 2007
Here we are going into April and you are doing very well. You are eating, vocalizing more and the weather has been awesome. We have spent a lot of time outside enjoying the waterfall by the patio. We have been truly blessed.
We are now approaching spring but you would never know it based on the weather. It has turned bitter cold and we are seeing snow showers. Easter is April 8th and we are planning on taking you to Uncle Fred’s.
Wednesday April 4th I arrived at the center at 3 p.m. and you were in bed. You were very agitated and went into full blown brain storming. The doctor came in and filled your Baclifin pump and they gave you morphine and Ativan to calm you. You were sweating profusely and your temp was 103. They put you on a cooling blanket and then on IV fluid. It is now 6 p.m. and you have finally calmed down. The aides will be in soon to make you comfortable and change your clothes. You slept all night and for the next two days.
Sunday April 8th, it is Easter and we are bringing you to Uncle Fred’s. All your Aunt’s, Uncle’s and cousins will be there to see you. When I got to the center you were quite active and I was concerned but you calmed down and were very quiet the ride to Uncle Fred’s. Everyone was glad to see you and you smiled some and slept some. You had lots of pictures taken with all the family and Melissa will add them to your web page.
It was a very blessed holiday!
We are now approaching spring but you would never know it based on the weather. It has turned bitter cold and we are seeing snow showers. Easter is April 8th and we are planning on taking you to Uncle Fred’s.
Wednesday April 4th I arrived at the center at 3 p.m. and you were in bed. You were very agitated and went into full blown brain storming. The doctor came in and filled your Baclifin pump and they gave you morphine and Ativan to calm you. You were sweating profusely and your temp was 103. They put you on a cooling blanket and then on IV fluid. It is now 6 p.m. and you have finally calmed down. The aides will be in soon to make you comfortable and change your clothes. You slept all night and for the next two days.
Sunday April 8th, it is Easter and we are bringing you to Uncle Fred’s. All your Aunt’s, Uncle’s and cousins will be there to see you. When I got to the center you were quite active and I was concerned but you calmed down and were very quiet the ride to Uncle Fred’s. Everyone was glad to see you and you smiled some and slept some. You had lots of pictures taken with all the family and Melissa will add them to your web page.
It was a very blessed holiday!
Saturday, March 24, 2007
March 24, 2007
March 24th, 2007... Today we had a party for Megan’s 30th birthday party or so we thought. However, when we arrived, it was for Dad and I for our 30th anniversary. What a shock! It was so beautiful. There was a deejay. Aun’t Nancy and Uncle Fred did the catering. Melissa had it beautifully decorated and she made a huge banner with our wedding picture displayed. The invitations reflected our wedding day and it was a great night. We saw many friends we don’t see often enough. I am so proud of Melissa. She brought so much joy and happiness to Dad and I. Even though you could not be there, you were always close to my heart and in my mind.
Saturday, March 17, 2007
Happy St. Patrick's Day
March 17th, 2007... It is St. Patty’s day and there will be a party at the center. They had non-alcoholic beer and Irish soda bread just to name a few. Dad came down to see you and we spent most of the time watching sport.
Thursday, March 1, 2007
March 1st, 2007
March 1st, 2007... Grandma Ricky would have been 83 years old today. If she were still here, Grandma and Pop Pop would be celebrating in Florida with all their friends. We miss her terribly.
Wednesday, February 14, 2007
February 14, 2007
February 14, 2007...HAPPY VALENTINE'S DAY
It is Valentine’s day and the center sells balloons and so I made up a spray of them for you. We spent the afternoon together and you were very calm and alert.
It is Valentine’s day and the center sells balloons and so I made up a spray of them for you. We spent the afternoon together and you were very calm and alert.
Saturday, February 10, 2007
February 10, 2007
February 10th, 2007... Unfortunately your recovery was short lived and you are very sick once again. You spiked 103 and you were sick all day and into the night. They ran a battery of tests and put you on IV fluid and the cooling blanket. Hopefully, it will not be a long drawn out time for you. Hopefully, you will bounce back quickly.
Wednesday, January 31, 2007
January, 2007
January 5, 2007... I was very upset, having a very bad day. I missed Grandma at the holidays and I was very sad because you were going through such a rough time. I decided to do something constructive and start writing your history for Andrea. It took me the weekend gathering up everything and writing things down. I decided pictures tell a thousand words and made up a packet of pictures of you from the time you were born. I sent it to Lanoka Harbor so she would get it on Friday.
January 17th, 2006 Grandma Jane passed away, Dad is very sad. We all gathered at the hospital and all the family came from out of state. The viewing was Friday and the burial on Saturday.
You continue to thrive and are more alert and focused. You are having good sessions with the teacher and you are now eating every day for me.
January 17th, 2006 Grandma Jane passed away, Dad is very sad. We all gathered at the hospital and all the family came from out of state. The viewing was Friday and the burial on Saturday.
You continue to thrive and are more alert and focused. You are having good sessions with the teacher and you are now eating every day for me.
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