June 22, 2007

I stayed at the center until very late. You were not well and your temp was high and you were extremely sweaty. They put you on the cooling blanket and gave you Ativan to help calm you. They are now certain there is something triggering the storming. They are taking a closer look at your liver functions and will be ordering further testing.

Thursday, you had a rough morning and they did not get you up until noon. When I arrived at 3 you were very calm and with the teacher. She was reading to you and you seemed to be enjoying it very much. After she left we went outside, it was beautiful. You seemed to be doing well but it was short-lived. You started to become agitated and uncomfortable and when they put you in bed you had a hard time settling down. After a time they had to give you medication to try to calm you but your temp went up to 102.9 and you were very sweaty. You finally fell asleep and the aides came to change you and make you more comfortable. I did not leave until very late again and was extremely emotional and very worried about you. It breaks my heart and I feel so helpless because all I can do is watch and try to calm you