June 27th,... Once again you were very alert and focused. You continue to thrive and you have this peacefulness about you and it is as though you are content in your own world. Your smile brings such joy and I truly believe it is your way of saying everything is okay.
June 28th... I arrived about 2:45, just in time to see Andrea before she had to leave. It was another great day and you have been responding so well. You enjoy the readings so much, your facial expressions tell all. It was a great week and I pray you will continue to grow.
Thursday, June 28, 2007
Tuesday, June 26, 2007
June 23-26, 2007
June 23rd... When I arrived you were up in the chair but very sleepy. Your eyes were very red and irritated and Elsie your nurse said you were very sleepy and somewhat lethargic. Sometimes after going through the episodes of storming and high fevers it wipes you out and you need time to recover. However two days of sleeping is a little too much and there was some legitimate concern. I was very worried about you, I took you outside for a while but you did not respond. When they put you in bed you did not wake up, respiratory came in to give you a breathing treatment because you have been some what congested.
June 24th..., I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
June 25th... You were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. I can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
June 26th... I arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and I showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
I had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
June 24th..., I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
June 25th... You were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. I can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
June 26th... I arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and I showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
I had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
June 23-26, 2007
when I arrived you were up in the chair but very sleepy. Your eyes were very red and irritated and Elsie your nurse said you were very sleepy and somewhat lethargic. Sometimes after going through the episodes of storming and high fevers it wipes you out and you need time to recover. However two days of sleeping is a little too much and there was some legitimate concern. I was very worried about you, I took you outside for a while but you did not respond. When they put you in bed you did not wake up, respiratory came in to give you a breathing treatment because you have been some what congested.
Sunday, June 24th, I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
Monday, June 25th, 2007 you were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. Mom can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
Tuesday, June 26th, Mom arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and Mom showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
Mom had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
Sunday, June 24th, I decided to come early to see for myself how you were. I prayed you would be more alert and responsive. When I arrived you were still in bed and your eyes were closed and you looked extremely relaxed. I thought you were sleeping but Elsie was so happy because you were responding to her. She called out your name and you opened your eyes immediately and then smiled. I was so thrilled to be able to see your eyes open and your smile said it all. We had a great afternoon, spent time outside and you were alert enough to eat some pears. It was truly a blessed day!
Monday, June 25th, 2007 you were very calm but alert. Today Andrea will come and spend time with you. She bought some things to work with you and is looking forward to the time she will be working with you. Mom can’t come to see you to day because of work and month end.
Andrea called to let me know you were doing well and you were alert. You seemed to enjoy your time with her and she said you remembered her. She is not one you will easily forget, she has a tremendous impact on people, always positive, compassionate and very patient.
Tuesday, June 26th, Mom arrived at 1:45 and Andrea was in the dayroom with you. It was great seeing her and we spent time with you. She got to feed you so she can give you a snack when she comes and Mom showed her some other things she can do for you when she is with you. It was a great afternoon, you were very alert and smiled all the time.
Mom had a meeting with Dr. McCagg and we decided to decrease the morphine and you will be going for several tests. Dr. Medina wants you to have a MRCP of the abdomen and a cat scan of your head. Maybe we can find a cause as to why you have these episodes of brain storming and fevers.
Friday, June 22, 2007
June 22, 2007
I stayed at the center until very late. You were not well and your temp was high and you were extremely sweaty. They put you on the cooling blanket and gave you Ativan to help calm you. They are now certain there is something triggering the storming. They are taking a closer look at your liver functions and will be ordering further testing.
Thursday, you had a rough morning and they did not get you up until noon. When I arrived at 3 you were very calm and with the teacher. She was reading to you and you seemed to be enjoying it very much. After she left we went outside, it was beautiful. You seemed to be doing well but it was short-lived. You started to become agitated and uncomfortable and when they put you in bed you had a hard time settling down. After a time they had to give you medication to try to calm you but your temp went up to 102.9 and you were very sweaty. You finally fell asleep and the aides came to change you and make you more comfortable. I did not leave until very late again and was extremely emotional and very worried about you. It breaks my heart and I feel so helpless because all I can do is watch and try to calm you
Thursday, you had a rough morning and they did not get you up until noon. When I arrived at 3 you were very calm and with the teacher. She was reading to you and you seemed to be enjoying it very much. After she left we went outside, it was beautiful. You seemed to be doing well but it was short-lived. You started to become agitated and uncomfortable and when they put you in bed you had a hard time settling down. After a time they had to give you medication to try to calm you but your temp went up to 102.9 and you were very sweaty. You finally fell asleep and the aides came to change you and make you more comfortable. I did not leave until very late again and was extremely emotional and very worried about you. It breaks my heart and I feel so helpless because all I can do is watch and try to calm you
Sunday, June 17, 2007
June 17, 2007
It is Father’s Day and I came early to spend time with you. You were sleepy but stayed awake the afternoon. We did not go outside it was too hot and Dad and Melissa went to Pop Pop’s and I met them there later.
Monday, you were very agitated in the morning and running a temp. I came down to see you and we spent time together. You were very calm but extremely exhausted from all the brain storming. Tuesday morning you were not feeling well and Dr. Meir came to see you. You have double ear infections which definitely attribute to your fevers and pain.
Monday, you were very agitated in the morning and running a temp. I came down to see you and we spent time together. You were very calm but extremely exhausted from all the brain storming. Tuesday morning you were not feeling well and Dr. Meir came to see you. You have double ear infections which definitely attribute to your fevers and pain.
Friday, June 15, 2007
June 15, 2007
You are finally feeling better even though you are still congested but alert and focused. I was able to take you outside and we spent quality time together. The weekend was the same for you, you were alert and focused and did very well eating. You are still running a low grade temp and I requested they bring in Dr. Meir to do an evaluation of your sinuses and ears. You still have tubes in your ears and often times they get infected.
Wednesday, June 13, 2007
June 13, 2007
If all is well with you we are going to the Somerset Patriots baseball game tonight...
At 11:30 I received a call from Valerie, she is the Recreational therapist who is taking us to the baseball game. She said you were not doing well and Dr. McCagg said you should not go to the game. I was unaware you were sick in bed and called the nurses station. The Dr. got on the phone and said you were running a temp and was very congested. They ordered a chest x-ray and she felt you were more relaxed and comfortable. When I arrived your temp was 101 and it had gone up to 102 earlier. You were pale and eyes were glassy and you were very congested. Respiratory was called in to deep suction you and you were on oxygen. Once they cleared your throat and gave you a respiratory treatment you settled down and went to sleep. I stayed for an hour to make sure you were okay and then I left. I called later in the evening and they said you were still sleeping. I hope you will do well the rest of the night and feel better tomorrow
At 11:30 I received a call from Valerie, she is the Recreational therapist who is taking us to the baseball game. She said you were not doing well and Dr. McCagg said you should not go to the game. I was unaware you were sick in bed and called the nurses station. The Dr. got on the phone and said you were running a temp and was very congested. They ordered a chest x-ray and she felt you were more relaxed and comfortable. When I arrived your temp was 101 and it had gone up to 102 earlier. You were pale and eyes were glassy and you were very congested. Respiratory was called in to deep suction you and you were on oxygen. Once they cleared your throat and gave you a respiratory treatment you settled down and went to sleep. I stayed for an hour to make sure you were okay and then I left. I called later in the evening and they said you were still sleeping. I hope you will do well the rest of the night and feel better tomorrow
Tuesday, June 12, 2007
June 12, 2007
They decided to keep you in bed for a while only it turned out to be almost all day. When I arrived at 3 I asked them to get you up so we could go outside and you could sit up for a while. It took you a long time to settle down and go to sleep that night because your schedule was all thrown off.
Thursday, June 7, 2007
June 7, 2007
I had training and left at 4 pm to come to the barbecue. When I arrived you were sound asleep in the chair. I could not arouse you but I took you outside anyway because it was a beautiful day and the barbecue was on the patio. You never did wake up through all the noise and music so I decided to bring you upstairs so the aides could put you in bed. I was very concerned because you never even flinched when they moved you and changed you and your coloring was very pale. The nurse took your vitals and your respirations were low but your o2 was good. You never woke up that night and Mom stayed for a while to make sure you were okay. We even had to put our hands on your chest to make sure you were breathing.
Friday you were better and much more alert. We got to go outside and you ate a little for me.
Saturday you were alert as well but a little more restless and slightly agitated. You calmed down and we spent the afternoon together but when they put you in bed you were very restless and having a difficult time calming down. Sometimes I truly believe you are trying to hard to break through this silence and be able to speak.
Sunday morning the nurse said you were very agitated and had a temp. They had to give you Ativan to calm you and put you on the cooling blanket to get down the temp. You were better after several hours and they were able to get you up in the chair. We went outside and you slept for a while, when you woke up Dad had arrived and you were very alert and responsive. Unfortunately, it was short lived. You became very agitated by dinner time and the nurse gave you Ativan once again. You were put to bed but the agitation got much worse and you spiked a temp of 102. They decided to put you on the cooling blanket and the Dr. ordered Ativan and Morphine injections. You were extremely agitated and sweating, it is so hard to watch you like that. I feel so helpless and can do nothing but try to calm you down. After several hours you fell asleep, the aides came in to change you because everything gets soaked from sweating. You slept all night and for the most part the next day. The medication lasts for some time and it takes a day or two for you to come completely out of it.
Friday you were better and much more alert. We got to go outside and you ate a little for me.
Saturday you were alert as well but a little more restless and slightly agitated. You calmed down and we spent the afternoon together but when they put you in bed you were very restless and having a difficult time calming down. Sometimes I truly believe you are trying to hard to break through this silence and be able to speak.
Sunday morning the nurse said you were very agitated and had a temp. They had to give you Ativan to calm you and put you on the cooling blanket to get down the temp. You were better after several hours and they were able to get you up in the chair. We went outside and you slept for a while, when you woke up Dad had arrived and you were very alert and responsive. Unfortunately, it was short lived. You became very agitated by dinner time and the nurse gave you Ativan once again. You were put to bed but the agitation got much worse and you spiked a temp of 102. They decided to put you on the cooling blanket and the Dr. ordered Ativan and Morphine injections. You were extremely agitated and sweating, it is so hard to watch you like that. I feel so helpless and can do nothing but try to calm you down. After several hours you fell asleep, the aides came in to change you because everything gets soaked from sweating. You slept all night and for the most part the next day. The medication lasts for some time and it takes a day or two for you to come completely out of it.
Monday, June 4, 2007
June 4, 2007
Several days have gone by and it is time to reflect on the past few days. You continue to be alert and focused and eating for me in the afternoons. I came down early on Friday so I could spend some time with you and then left at 3 pm. Matt came down and spent the rest of the afternoon so I could leave to do some shopping. Marge comes at 6 pm to give you a massage which you thoroughly enjoy. I have her come every other week and it helps to relax your muscles and it is very soothing.
When I arrived on Saturday around noon you were very vocal and still in bed. I asked the nurse to call your aide to get you up in the chair, you don’t do well in bed for long periods of time. Especially because you are in bed by 6 at night and up every day during the week by 10. You were getting restless and uncomfortable, it was great hearing your voice. When they first got you in the chair you were agitated and restless but I spent some time with you and calmed you down and you were fine the rest of the day.
Melissa went on a business trip to New York on Friday that turned into a nightmare for her. When she got to NY her computer crashed and she left her cell phone in the limo. Was not much fun for her and now she has to deal with the help desk to get a new computer. She has very important data and reports she needs for her meeting today and only an hour or so in the morning for them to get her set up.
This week I have training on Thursday from 11-4, not sure if I will make it down. They are having a barbecue on Thursday from 6-7:30 so I may come after training. Friday, I have PC Richards coming to install a new air conditioner in the living room wall, I am hoping they come in the morning so I can come down to see you in the afternoon.
It is a busy time at home, we are getting to the end of all the construction and painting. The new windows are in the living room and dining room and the trim is complete. Now your cousin Anthony has to finish painting. John is coming to install the oak railings and the new runner on the steps. It is looking great and I can’t wait for it all to be done. This has all been going on since January when they remodeled the kitchen. The hardwood floors look awesome, what a difference.
Wish that you could come home to enjoy it with us! Next I will start tackling your room, there is so much that needs to be done that has been untouched in 5 years. I think it is time.
When I arrived on Saturday around noon you were very vocal and still in bed. I asked the nurse to call your aide to get you up in the chair, you don’t do well in bed for long periods of time. Especially because you are in bed by 6 at night and up every day during the week by 10. You were getting restless and uncomfortable, it was great hearing your voice. When they first got you in the chair you were agitated and restless but I spent some time with you and calmed you down and you were fine the rest of the day.
Melissa went on a business trip to New York on Friday that turned into a nightmare for her. When she got to NY her computer crashed and she left her cell phone in the limo. Was not much fun for her and now she has to deal with the help desk to get a new computer. She has very important data and reports she needs for her meeting today and only an hour or so in the morning for them to get her set up.
This week I have training on Thursday from 11-4, not sure if I will make it down. They are having a barbecue on Thursday from 6-7:30 so I may come after training. Friday, I have PC Richards coming to install a new air conditioner in the living room wall, I am hoping they come in the morning so I can come down to see you in the afternoon.
It is a busy time at home, we are getting to the end of all the construction and painting. The new windows are in the living room and dining room and the trim is complete. Now your cousin Anthony has to finish painting. John is coming to install the oak railings and the new runner on the steps. It is looking great and I can’t wait for it all to be done. This has all been going on since January when they remodeled the kitchen. The hardwood floors look awesome, what a difference.
Wish that you could come home to enjoy it with us! Next I will start tackling your room, there is so much that needs to be done that has been untouched in 5 years. I think it is time.
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